Leading the way. Excellence in research
The Cancer, Palliative and End of Life Care (CPELC) Research Group is based in Health Sciences at the University of Southampton, which was ranked second in the UK for excellence in nursing research in the 2008 Research Assessment Exercise.
As a research group we are focussed on enhancing the lives of people affected by cancer, other life-limiting conditions, and those requiring end of life care.
Our research has made a major contribution to the way that end of life care is delivered in the UK and has influenced end of life care throughout the world. We play a key role in driving Cancer Survivorship research and policy agenda through our involvement in the National Cancer Survivorship Initiative and developing Patient Reported Outcomes Measures (PROMs). In addition, we have been instrumental in driving up early detection rates for cancer, raising awareness about organ donation and improving support for carers and the bereaved.
We are an important provider of post graduate specialist training through our Masters, DClinP and PhD programmes with a dedicated MSc in Clinical Leadership in cancer, palliative and end of life care. Our research directly informs our education programmes and all our students play an active role in the research group.
A few examples of our key research:
The VOICES questionnaire, originally developed in the 1990s by Professor Julia Addington-Hall, measures the quality of end of life care from the perspective of bereaved relatives. In 2010, CPELC researchers redesigned VOICES and developed the methodology for the first Department of Health survey of end of life care.
The Macmillan Survivorship Research Group is funded by Macmillan Cancer Support to conduct research on issues for cancer survivors, focussing on understanding how health and well-being are restored following cancer treatment, and supporting self-management of cancer related problems.
This Fellowship supports Dr Gerard’s (Reader in Health Economics) research developing and using ‘discrete choice experiments’ to value quality of life, health care, particularly end of life care, including measurement and valuation of supportive care and exploring how to value informal caregiving at the end of life.
The study follows 500 women at five specific time points over a period of one year after treatment for breast cancer and covers the onset and pattern of joint aches, pains and stiffness, how these affect quality of life and daily activities, and with which cancer treatments they are associated.