Published papers from previous VOICES surveys
Burt J, Shipman C, Richardson A, Ream E, Addington-Hall JM. The experiences of older adults in the community in the last three months of life: a national survey of bereaved relatives. Age and Aging.2009; 1-6. doc: 10.1093/ageing/afp212. Advance Access published November 23, 2009
Young AJ, Rogers A, Dent L, Addington-Hall JM. Experiences of hospital care reported by bereaved relatives of patients after a stroke: a retrospective survey using the VOICES questionnaire. Journal of Advanced Nursing. DOI: 10.1111/j.1365-2648.2009.05081x
Addington-Hall JM, O’Callaghan A. A comparison of the quality of care provided to cancer patients in the UK in the last three months of life in in-patient hospices compared with hospitals, from the perspective of bereaved relatives: results from a survey using the VOICES questionnaire. Palliative Medicine. 2009;23:190-197
Young AJ, Rogers A, Addington-Hall JM, The quality and adequacy of care received at home in the last 3 months of life by people who died following a stroke: a retrospective survey of surviving family and friends using the ‘Views of Informal Carers - Evaluation of Services’ questionnaire. Health and Social Care in the Community. 2008;16: 419-428
Aspinal F, Hughes R, Dunckley M, Addington-Hall JM. What is important to measure in the last weeks and months of life?: a modified nominal group study. International Journal of Nursing Studies 2006; 43: 393-403
Elkington H, White P, Addington-Hall JM, Higgs R, Edmonds P. The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life. Palliative Medicine 2005; 19: 485-491
Hughes R, Saleem T, Addington-Hall JM. Towards a culturally acceptable end-of-life survey questionnaire: a Bengali translation of VOICEs. International Journal of Palliative Nursing. 2005;11: 116-123
Elkington H, White P, Addington-Hall J, Higgs R, Pettinari C. The last year of life in COPD: a qualitative study of symptoms and services. Respiratory Medicine 2004;98:439-445
Rogers A, Karlsen S, Addington-Hall J. "All the services were excellent. It is when the human element comes in that things go wrong": Dissatisfaction with hospital care in the last year of life. Journal of Advanced Nursing 2000:31:768-774
Rogers A, Karlsen S, Addington-Hall J. Dying for care: the experiences of terminally ill cancer patients in hospital in an inner-city health district. Palliative Medicine 2000:14;53-54
Addington-Hall J, Karlsen S. Do home deaths increase distress in bereavement? Palliative Medicine 2000;14:161-162
Addington-Hall JM, Walker L, Jones C, Karlsen S, McCarthy M. A randomised controlled trial of postal versus interviewer administration of a questionnaire measuring satisfaction with and use of services received in the year before death. Journal of Epidemiology and Community Health 1998;52:802-807
Published papers from the Regional Study of Care for the Dying
Addington Hall JM, McCarthy M. The Regional Study of Care for the Dying: methods and sample characteristics. Palliative Medicine 1995;9:27 35.
Seale C, Addington Hall JM. Dying at the best time. Soc Sci Med 1995;40:589 595.
Seale C, Addington Hall JM. Euthanasia: the role of good care. Soc Sci Med 1995;40:581 587.
Addington Hall JM, McCarthy M. Dying from cancer: results of a national population based investigation. Palliative Med 1995;9:295-305
Addington-Hall JM, Lay M, Altmann D, McCarthy M. Symptom control, communication with health professionals, and hospital care of stroke patients in the last year of life as reported by surviving family, friends and officials. Stroke 1995;26:2242-2248
Fakhoury WKH, McCarthy M, Addington Hall JM. Determinants of informal carers' satisfaction with services for dying cancer patients. Soc Sci Med 1996;42:721 731.
Fakhoury WKH, McCarthy M, Addington Hall JM. Which informal carers are most satisfied with services for dying cancer patients? European Journal of Public Health 1996;6:181 187.
McCarthy M, Lay M, Addington Hall JM. Dying from heart disease. Journal of the Royal College of Physicians of London 1996;30:325 328.
McCarthy M, Addington Hall JM, Altmann D. The experience of dying with dementia: a retrospective survey. International Journal of Geriatric Psychiatry 1997;12:404-409
McCarthy M, Addington Hall JM, Lay M. Communication and choice in dying from heart disease. Journal of the Royal Society of Medicine 1997;90:128 131.
Fakhoury WKH, McCarthy M, Addington Hall JM. The effects of the clinical characteristics of dying cancer patients on informal caregivers' satisfaction with palliative care. Palliative Med 1997;11:107-115
Seale C, Addington Hall JM, McCarthy M. Awareness of dying: prevalence, causes and consequences. Soc Sci Med 1997;45:477-484
Fakhoury WKH, McCarthy M, Addington-Hall J. Carers' health status: is it associated with their evaluation of the quality of palliative care? Scandinavian Journal Of Social Medicine,1997;25: 296-301
Addington-Hall JM, Altmann D, McCarthy M. Who gets hospice in-patient care? Soc Sci Med 1998: 46;1011-1016
Addington Hall JM, Altmann D, McCarthy M. Variations in age in symptoms and dependency levels experienced by people in the last year of life, as reported by surviving family, friends and officials. Age and Aging 1998;27:129-136
Addington Hall JM, Lay M, Altmann D, McCarthy M. Community care for stroke patients in the last year of life: results of a national retrospective survey of surviving family, friends and officials, Health and Social Care in the Community 1998;6:112-119
Grande G, Todd C, Addington-Hall JM. Variables related to place of death and access to home care services: are certain patient groups at a disadvantage? Social Science and Medicine 1998;47:565-579
Karlsen S, Addington-Hall JM. How do cancer patients who die at home differ from those who die elsewhere? Palliative Medicine 1998; 12: 279-286
Addington-Hall JM, Fakhoury W, McCarthy M. Specialist Palliative Care in non-malignant disease. Palliative Medicine 1998;12:417-427
Field D, Addington-Hall JM. Extending specialist palliative care to all? Social Science and Medicine 1999;48:1271-1280
Addington-Hall JM and Karlsen S. Age is not the crucial factor in determining how the palliative care needs of people who die from cancer differ from those of people who die from other causes. Journal of Palliative Care 1999:15:13-19
Addington-Hall JM, Altmann D. Which terminally ill cancer patients receive care from community specialist palliative care nurses? Journal of Advanced Nursing 2000;32:799-806
Edmonds P, Karlsen S, Addington-Hall JM. Quality of care in the last year of life: a comparison of lung cancer and COPD patients. Palliative Medicine 2001;15:287-295