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The University of Southampton
Clinical Ethics and Law at Southampton

Genetic Medicine; What are the Ethical Issues Study Day Event

Lifelong Learning
Genetic Medicine
10:00 - 16:00
16 January 2016
Avenue Campus Highfield Road Southampton SO17 1BF

For more information regarding this event, please email Lifelong Learning at .

Event details

The CELS (Clinical Ethics and Law at Southampton) research group are hosting a day in conjunction with Lifelong Learning lead by experts from within Southampton.

The theme for this day will be a series of talks about genetic testing and include issues such as: What do my genes say about me? How do we manage unexpected results? What are the limits to consent and confidentiality and genetic testing during pregnancy? This thought provoking study day will provide you with the opportunity to learn and engage in discussion about the current and future possibilities of genetic testing from academics of international distinction.


£40 full rate (£30 Loyalty Scheme price*)

£25 loyalty rate (Harbour Lights Members, Friends of Parkes, English Teachers Network, U3A members, university staff and alumni)

£12.50 discount rate (students/sixth form & college students and those in receipt of income-based Job Seeker's Allowance, Income Support, Working Tax Credit, Council Tax or Housing Benefit)

All prices include lunch and refreshments

*The Loyalty Scheme price is available for those paying the full rate, once you have purchased one study day at full price (£40) you are then entitled to pay £30 for other study days during the academic year. Please select this option in the Online Store but please note you can not use the Loyalty Scheme to pay for other guests.




10:00 Arrival and coffee


10:15 Welcome to the day

Introduction to genomic medicine and genetic testing: Some of the possibilities and pitfalls

Gillian Crawford, Principal Genetic Counsellor/Clinical Research Fellow


10:50 Whose eyes on your genome? Confidentiality and information-sharing in genomic medicine

Sandi Dheensa, Post-doctoral Research Fellow


11:30 Coffee Break


11:50 New technologies in genomics: “the potential and the hype”

Anneke Lucassen, Professor/Consultant in Clinical Genetics


12:30 How sci-art helps us to engage with the issues

Halina Mikolajek, Post-doctoral Research Fellow, Centre for Biological Sciences


12:40 Lunch (Cafe area)


13:40 World café

Angela Fenwick, Associate Professor in Medical Ethics and Education


14:40 Coffee Break


15:00 Genomic testing: managing incidental findings and uncertainty

Gillian Crawford

Pre-conception genomic testing: is implementation in healthcare possible and desirable?

Mirjam Plantinga, Research Fellow


15:45 Discussion and final questions

Led by Anneke Lucassen



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