The EPPiGEN project- Ethical Preparedness in Genomic Medicine
This 5 year programme of research funded by the Wellcome Trust builds on previous CELS research to develop and deliver empirical and conceptual bioethics research as genomic medicine moves into mainstream medical practice. We will conduct our research as genomic approaches to diagnosis and treatment, such as the 100,000 genome project, become embedded within health care and focus on the extent to which professionals are prepared for navigating the complex issues within the new working environment of clinical genomics; one where research and clinical practice are more co-dependent than in the past, and where responsibilities of care, both to one person over time as well as to their current and future relatives are changing. We will utilise a range of research methods across a variety of settings to map the experience of practitioners, patients and participants in genomic medicine, the ethical issues they confront, and the impact on practice when these are challenging of their established practice, be that at the stage of recruitment/ introduction, diagnosis (or lack of), treatment, surveillance, longer term contact or need for contact of others.
“This south coast collaboration between CELS and Prof Farsides’ group promises to be very productive” said Anneke, “we have already set the ground work for a fantastic collaboration, with several joint publications from our preliminary work”.
There are several new posts associated with this award, from doctoral studentships to senior research fellows. Watch out for tweets from @eppigen or @cels_uos or contact us if you want to get involved, or would like more details