The University of Southampton
Courses

NPCG2027 Long Term Conditions and Care

Module Overview

This module is a generic module that encourages all fields to consider the experience of the individual and their family in disease trajectory across the life span and associated health and social care needs. The learning outcomes have been broken down into generic and field specific, but it is anticipated that in field specific groups relevant content will be further explored and led by the learner, as part of the group or individually and facilitated by the teacher. To this end content and resources accessed are not exhaustive.

Aims and Objectives

Module Aims

This module will develop your knowledge and understanding of the holistic care of people who have long term health needs, such as living with chronic physical and / or mental health problems. This module will enable you to participate in the delivery of care which enables people and their families to live well with a long term condition. In addition to the learning outcomes displayed below, those in the Adult field will be able to: 4. Explore the pathophysiology of long term conditions and the implications for nursing care 5. Identify the role of the adult nurse in maintenance of psychosocial well-being and the recognition of deterioration in clients with long term conditions. 6. Explore the nurses role in promoting and facilitating self care and empowerment In addition to the learning outcomes displayed below, those in the Children’s field will be able to: 4. Explore the pathophysiology of long term conditions and the implications for nursing care 5. Analyse the role of the nurse within the multidisciplinary team to promote effective transition of children and young people to adult services 6. Explore the principles of loss, grief and chronic sorrow in relation to children, young people and their families with long term conditions In addition to the learning outcomes displayed below, those in the Mental Health field will be able to: 4. Articulate the causes and consequences of long term conditions and the implications of these for nursing care 5. Identify the role of the mental health nurse in maintenance of physical health and the recognition of deterioration in clients with long term conditions. 6. Debate different strategies for communicating with people experiencing cognitive impairment as a result of a long term condition.

Learning Outcomes

Learning Outcomes

Having successfully completed this module you will be able to:

  • Reflect on the lived experience of the person with a long term condition (LTC) and their journey through the age continuum
  • Evaluate the role of the nurse in partnership working to support and promote the health and well being of individuals with a long term condition
  • Discuss the nurse’s role in the assessment and management the care of people with long term conditions in different settings and as they move between different services

Syllabus

Generic – All pathways • Policy context for the care of patients with LTC’s • Long term conditions across the age continuum • The “Expert patient” • Genetics and genomics related to LTC’s • Exploration of the evidence, aetiology, symptoms, treatments and psychosocial management of long term conditions, including: o Chronic respiratory, endocrine and cardiac disease (Diabetes, COPD, Coronary Heart Disease) o Acquired brain injury o Neurodevelopment diseases, e.g. autistic spectrum disorders o Neurodegenerative diseases, e.g. dementias • Promotion of health and well being to ‘live well’ with a long term conditions • Introduction to the changing context of health care provision for individuals with long term health care needs to include: o Lay care o Community resources and services o Information resources • Exploration of the concept of the expert patient, self care and personalisation in relation to long term conditions and health care • The nurses role in supporting individuals and their families through the use of therapeutic interventions and therapeutic use of self (including psychotherapeutic interventions) • Positive risk taking • Telehealth • Strategies for effective communication • Assessment and management of chronic pain • Legal and ethical principles and frameworks associated with the provision of care to include: o The Children Act o Mental Capacity Act o Human rights act o Equalities Act Child – Field Contextual exploration of the above and in addition: • Continuation of education • Impact of long term health needs on family and siblings including exploration of theories of loss, grief and chronic sorrow in relation to living with a long term health condition • Transition from child to adult services • School life • Exploration of palliative and end of life care Mental Health Field Contextual exploration of the above and in addition: • Physical health assessment and interventions • Managing effective transition between services for older people with cognitive impairment • Pharmaceutical implications and effective medicines management • Concordance, empowerment and self efficacy • Exploration of palliative and end of life care Adult Field Contextual exploration of the above and in addition: • Transition from child to adult services • Occupational health needs • Managing effective transition between services for older people with cognitive impairment • Concordance, empowerment and self efficacy • Pharmaceutical implications and effective medicines management • The concept of self care in the management of a long term condition • Underpinning physiology of relevant respiratory, endocrine and cardiac disease

Special Features

The use of educational technology (e.g. WordPress and Blackboard; Skype) is ensures broad access to generic and field specific resources There is a Partnerships in Care Conference Day with workshops

Learning and Teaching

Teaching and learning methods

Key note lectures Technology Enhanced Learning (TEL) Directed study Self directed

TypeHours
Lecture51
Completion of assessment task136.5
Total study time187.5

Resources & Reading list

Department of Health (2008). High Quality Care for All. NHS Next Stage Review Final Report. (Darzi Report). 

Thomas B (2004). Lessons from my child- living with and loving a disabled child.. 

Downs M and Bowers B (2008). Excellence in dementia care: research into practice. 

Kitwood T (1997). Dementia reconsidered: the person comes first (rethinking ageing).. 

Meerabeau, E., Wright, K. (2011). Long-Term Conditions: Nursing Care and Management.. 

Improving quality of life for people with long term conditions.

Department of Health (2001). The National Service Framework for Older People. 

Hewitt Taylor J (2008). Providing support at home for children and young people who have complex health care needs.. 

Margereson, C., Trenoweth, S. (Eds) (2009). Developing Holistic Care for Long-term Conditions. 

Lillyman, S., Saxon, A. (2008). Community Matrons: Caring for people with long-term conditions. 

Snoddon, J. (2010). Case Management of Long-term conditions: Principles and Practice for Nurses. 

Price J & McNally P (2009). Palliative care for children and families. 

Furze, G., Donnison, J., Lewin, R. (2008). The Clinician’s Guide to Chronic Disease Management for Long-term conditions.. 

Lorig, K. (ed) (2007). Self-management of Long-term Health Conditions: A Handbook for People with Chronic Disease:. 

Presho, M. (2007). Managing Long Term Conditions: A Social Model for Community Practice. 

NHS and Social Care Act.

Department of Health (2006). Supporting people with long-term conditions to self-care. 

Cunningham C (2006). Downs syndrome an introduction for parents and carers. 

Department of Health (2005). Supporting people with long term conditions: An NHS and Social Care Model to support local innovation and integration. 

Nash M (2010). Physical health and well-being in mental health nursing: clinical skills for practice. 

Edwards M (2010). Promoting psychological well-being in children with acute and chronic illness. 

Delivering better services for people with long-term conditions: Building the house of care..

For resources which are required or considered useful for the module: key texts, text books, data books, software, web sites, other sources of related information. Description and/or list, with URL, library reference, etc. 

How to deliver high-quality, patient-centred, cost-effective care. Consensus solutions from the voluntary sector..

Clever H & Nicholson D (2007). Parental learning disability and children needs. Family experiences and effective practice.. 

Reed, A. (2011). Nursing in Partnership with Patients and Carers. 

Department of Health (2001). Expert Patient: A new approach to chronic disease management for the 21st century.. 

Hewitt Taylor J (2011). Working with children who need long term respiratory support. 

Jones B (2003). Childhood disability in a multicultural society.. 

Co-ordinated care for people with complex chronic conditions: Key lessons and markers for success..

House of Commons Health Committee.

Crumbie, A., and Lawrence, J. (2002). Living with a chronic condition: a practitioner’s guide. 

Gonzalez, V. (2006). Living a healthy life with chronic conditions. 

Stokes G (2000). Challenging behaviour in dementia: a person-centred approach. 

Teare J (2008). Caring for children with complex needs in the community. 

Nicol, J. (2011). Nursing Adults with Long Term Conditions.. 

On line resources and field appropriate publications including links to legislation, policy and guidance from Department of Health [DH] and Local and National Government and Non Governmental Organisations at Local and National Level; blogs and video stori. 

Hewitt Taylor J (2007). Children with complex and continuing health care needs: The experiences of children, families and care staff. 

The House of Care : Planning services at national, local, and personal levels for people with long-term conditions.

Carrier, J. (2009). Managing Long Term Conditions and Chronic Illness in Primary Care. 

Department of Health (2000). The National Service Framework for CHD. 

May H and Edwards P (2009). Enriched care planning for people with dementia: a good practice guide for delivering person-centred care.. 

Grinyer A (2012). Palliative and end life care for children and young people. Home, hospice and hospital.. 

Valentine F & Lowes L (2007). Nursing care of children and young peoples with chronic illness. 

Department of Health (2006). Our health, our care, our say: a new direction for community services. 

Assessment

Summative

MethodPercentage contribution
Individual Presentation  (15 minutes) 100%

Referral

MethodPercentage contribution
Individual Presentation 100%

Repeat Information

Repeat type: Internal & External

Costs

Costs associated with this module

Students are responsible for meeting the cost of essential textbooks, and of producing such essays, assignments, laboratory reports and dissertations as are required to fulfil the academic requirements for each programme of study.

In addition to this, students registered for this module typically also have to pay for:

Please also ensure you read the section on additional costs in the University’s Fees, Charges and Expenses Regulations in the University Calendar available at www.calendar.soton.ac.uk.

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