From the information we have collected so far the only feature that is present in most TND patients (apart from the diabetes) is that they are very small at birth (below 3kg and usually around 2kg). In some cases doctors have reported something called macroglossia- a big tongue - and a hernia at the tummy button. Occasionally children can have learning difficulties and other congenital problems but it is not yet clear whether this is due to TND or is unrelated as the cases are few.