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Health Sciences

Professor Julia Addington-Hall BA, PhD, honMFPH

Visting Professor, End of Life Care

Professor Julia Addington-Hall's photo

Professor Julia Addington-Hall is Professor of End of Life Care within Health Sciences at the University of Southampton.

A social scientist whose internationally renowned research into palliative and end of life care takes a public health perspective.

Key Interests

Strategic development and leadership of research in Health Sciences, particularly in relation to the Research Excellence Framework

Strategic development and mentorship of emerging researchers and tomorrow’s research leaders

Leadership of multi-disciplinary research programmes in palliative and end of life care,

Knowledge generation, particularly in relation to need for, access to, and effective of, palliative and end of life care; in the meaning and predictors of home as place of death; and in quality improvement at the service and population level

Working collaboratively with clinicians and policy-makers to ensure the impact of research on policy and practice.

Advisory groups membership

2006 – current. Member, Scientific Advisory Council. National Palliative Care Research Center. New York. USA.

2009 – current. Member, Motor Neurone Disease Association Healthcare Research Advisory Panel.

2000 – current. Member, ‘BMC Palliative Care’ Editorial Board.

Collaborations

2008- 2012 Department of Health
2010-2011 South Central SHA, East Berkshire PCT, Isle of Wight PCT
2006-2012 St Christopher’s Hospice, Sydenham
2010 -2013 UEA, University of Aberdeen, University of Manchester, Lancaster University, University of Bristol, UOS – School of Management and SOM.
2010 – 2013. European Association of Palliative Care (EAPC) ‘UNBIASED’ collaborative research group on palliative sedation (University of Nottingham; Lancaster University; Sheffield University; Queen Mary, University of London; End of Life Care Research Group, Vrije Universiteit Brussel, Belgium; Bioethics Institute Ghent, Ugent, Belgium; Department of Metamedica, Vu Medisch Centrum Amsterdam; Department of Public Health, Erasmus MC, Rotterdam, Netherlands;
2009 – 2012. Multiple Sclerosis Society. Neurology Nurses and Directorate at SUHT
2008-2012. Cancer Care Group at SUHT.
2010-2012. Clinical Trial Network Nurses
2008-2012. Cancer of Unknown Primary (CUP) Foundation
2006-2012. Universities of Nottingham, Lancaster, Manchester, Liverpool in context of CECO (Cancer Experiences Collaborative).

2007- End of Life Care Research Group, Vrije Universiteit Brussel, Belgium (Dr Joachim Cohen, Professor Luc Deliens)

Presentations and Prizes

2008- 2012 Department of Health
2010-2011 South Central SHA, East Berkshire PCT, Isle of Wight PCT
2006-2012 St Christopher’s Hospice, Sydenham
2010 -2013 UEA, University of Aberdeen, University of Manchester, Lancaster University, University of Bristol, UOS – School of Management and SOM.
2010 – 2013. European Association of Palliative Care (EAPC) ‘UNBIASED’ collaborative research group on palliative sedation (University of Nottingham; Lancaster University; Sheffield University; Queen Mary, University of London; End of Life Care Research Group, Vrije Universiteit Brussel, Belgium; Bioethics Institute Ghent, Ugent, Belgium; Department of Metamedica, Vu Medisch Centrum Amsterdam; Department of Public Health, Erasmus MC, Rotterdam, Netherlands;
2009 – 2012. Multiple Sclerosis Society. Neurology Nurses and Directorate at SUHT
2008-2012. Cancer Care Group at SUHT.
2010-2012. Clinical Trial Network Nurses
2008-2012. Cancer of Unknown Primary (CUP) Foundation
2006-2012. Universities of Nottingham, Lancaster, Manchester, Liverpool in context of CECO (Cancer Experiences Collaborative).

2007- End of Life Care Research Group, Vrije Universiteit Brussel, Belgium (Dr Joachim Cohen, Professor Luc Deliens)

Research interests

What palliative care is, who needs is, and how it can most effectively be delivered;

The meaning of, and predictors of, home as place of death;

Quality improvement in palliative and end of life care at the service and population level

Decision-making at the end of life

The family in dying and bereavement: variations and consequences

Research group

Complex Healthcare Processes

Research project(s)

Men as carers in multiple sclerosis: identifying their support needs and preferences

This research therefore aims to identify and understand the support needs and preferences of men caring for women with MS.

A longitudinal cohort study of joint and muscle aches, pains and stiffness in women with primary breast cancer

A study to follow the development and natural history of joint pain in women who have been treated for breast cancer.

Transitions between services at the end of life for older people: patient and provider perspectives - Dormant

This study is examining how and why older people frequently move between different care settings in their last few months of life.  It involves interviews with patients, bereaved relatives and care commissioners and providers, as well as analysis of linked hospital episode and mortality data.

Variations in out of hours end of life care provision across primary care organisations in England and Scotland - Dormant

A mixed method study was conducted to explore variations in out of hours end of life care provision across primary care organisations in England and Scotland. The aim was to better understand the complexities of the system and how high quality out of hours care can best be delivered to all end of life patients and families.

Managing suffering at the end of life: a study of continuous deep sedation until death

This study aims to study how the technology of continuous sedation until death has been reported in the clinical and bio-ethical literature and criteria for decision-making

The IMPROVE study: VOICES redesign and testing project to inform the development of a national survey

The VOICEs survey will provide a mechanism for assessing the quality of care provided to people at the end of life, and their carers with key areas set out in the End of Life Care Strategy, thus addressing the current lack of available information to support service evaluation and improvement in this area.

Exploring the views and experiences of critical care nurses when involved in providing and facilitating end of life care - Dormant

This study aims to explore the role of the critical care nurse during end of life care.

End of Life Care in Intensive Care Settings: a case study approach - Dormant

A review of deaths occurring in Intensive Care Units (ICUs) in England, Wales and Northern Ireland between 1995 and 2001 indicate that 30.8% of patients died prior to discharge from hospital

Systematic review of the literature for non-pharmacological interventions for arthralgia in non cancer conditions - Dormant

This review is to explore the effectiveness of non-pharmacological interventions used in people with arthritis following breast cancer.

Communication pathways surrounding people with cancer: who is involved, how do they communicate, and how do patients understand and manage this? - Dormant

The aim of this research was to describe who is involved in the care of people with advanced cancer/palliative care need. We described the network of care and communication pathways surrounding them and explored the patient’s understanding and contribution to this.

A collaborative research study to develop and test a clinical scorecard for St Christopher's Hospice, Sydenham - Dormant

A project to develop and test a clinical scorecard for St Christopher's Hospice, Sydenham, in collaboration with the hospice.

An investigation for the prevalence, impact and causes of joint aches, pains and muscle stiffness in women following primary treatment for breast cancer - Dormant

An investigation for the prevalence, impact and causes of joint aches, pains and muscle stiffness in women following primary treatment for breast cancer

Cancer experiences: Supportive and palliative care needs, problems and solutions (the CECo collaborative) - Dormant

Research that aims to make substantial progress in the quality of research in supportive and palliative care

Comprehensive review of evidence base for national cancer survivorship initiative - Dormant

This project aimed to review the research evidence and undertake a national consultation in order to learn about the problems faced by cancer survivors and the effectiveness of interventions.

Evaluation of the innovative hospice services for non-cancer patients - Dormant

A project to conduct a formative evaluation of the hospice services for non-cancer patients.

How can discussions with relatives be facilitated following predictive genetic testing for BRCA1/2? - Dormant

This research aims to facilitate discussions about genetic risk associated with BRCA1/2 with relatives to enable relatives to make informed decisions about their own risk management.

Older women's experience of breast cancer and other health conditions - Dormant

This study looks at older women's experience of breast cancer and other health conditions

Palliative care in acute strokes - Dormant

This study will provide a strong foundation for the enhancement of care for a significant number of patients who die in the acute stage of stroke.

Predicting weight loss in people with cancer: Development and validation of a screening tool - Dormant

The aim of this project is to identify people with cancer who are at greatest risk of future weight loss by the development and validation of a simple and practical screening tool.

Supporting relatives: an investigation into obstacles and aids to information exchange within families affected by cancer - Dormant

The provision of information for patients and others affected by cancer has been highlighted in the Cancer Reform Strategy as an area for improvement in national cancer services (Department of Health, 2007).

Systematic review on preference for place of care/death in end of life

To identify the most popular as well as alternative place(s) of care/death and improve ways of recording patients' preferred place of care/death in future studies.

Understanding the unknown: a case study approach to explore patients, carers and health care professionals; experiences of cancer of unknown primary site - Dormant

This study aims to explore patients’ families and health care professionals’ experiences of cancer of unknown primary site, in order to inform the development of evidence-based and patient-centred clinical care.

Systematic review on end of life care experiences of service and intervention evaluation

Aims to provide baseline data on contemporary experiences of UK end of life care

Systematic review on end of life care experiences of information disclosure, communication and decision-making involvement

The aim of the project is to provide baseline data on contemporary experiences of UK end of life care

Survey research methods, including questionnaire design and testing

Mixed methods research

Key skills in building a research career, including writing for publication, planning and executing studies, grantsmanship

Palliative and end of life care policy

PhD supervision

Professor Julia Addington-Hall
University of Southampton Health Sciences Building 67 Highfield Southampton SO17 1BJ
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