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Research project: Development, implementation and evaluation of the True NTH Supported Self Management and Follow Up Care Programme

Currently Active: 
Yes

Prostate cancer is the most common type of cancer amongst men in the UK, with over 40,000 new cases diagnosed each year. Survival rates for prostate cancer are high. Men who have completed treatment for prostate cancer will typically attend regular, face-to-face reviews in the hospital clinic for up to 10 years. There is a need for alternative models of follow- up care: prostate cancer services are under increasing pressure due to numbers of men and a shortage of specialist nursing staff, and men report high levels of continuing unmet need in relation to their prostate cancer.

Project Overview

Building on work by Macmillan Cancer Support, NHS Improvement and others, we have developed a new model of follow-up care, based on principles of supported self-management and remote monitoring. Men who are identified as suitable for the Programme will no longer return to the hospital for traditional clinic based follow-up appointments. Instead, they will have access to a bespoke computer system to support them to self-manage their care. They will be monitored remotely by the specialist team and will be called back to clinic if test results, reported symptoms, or results from a Holistic Needs Assessment give cause for concern. The model will be implemented in five NHS Trusts in England during 2015-2016.

To determine if it is effective, we are evaluating the model in four NHS Trusts. The evaluation will:

compare key outcomes (unmet needs, quality of life, anxiety and depression, skills for self management, healthy behaviours, health service use and satisfaction with follow up care) for men in the Programme with men who receive clinic based follow up care

compare costs of the Programme with clinic based follow up care

compare health care professionals’ and patients’ experiences of clinic based follow up care and the Programme, document processes which promote or inhibit the Programme’s implementation

Results from the evaluation will be available in the Spring of 2017

 

Project team at Bath Learning Event, February 2015.  Double-click to zoom
True NTH UK project team

Project staff

Professor Alison Richardson, Chief Investigator, University of Southampton & University Hospital Southampton NHS Foundation Trust;

Hazel Brodie, Project Manager, University of Southampton;

Dr Ines Mesa-Eguiagaray, Medical Statistician, University of Southampton;

Dr Jane Frankland, Senior Research Fellow, University of Southampton;

Dr Rebecca Foster, Research Fellow, University of Southampton;

Professor Claire Foster, University of Southampton

Dr Debbie Cooke, Senior Lecturer, University of Surrey;

Professor Heather Gage, Professor of Health Economics, University of Surrey;

Jake Jordan, Research Fellow in Health Economics, University of Surrey;

Dr Rose Lindsay, Research Fellow, University of Southampton

Dr Ruth Pickering, Medical Statistician, University of Southampton;

Miranda Benney, Project Nursing Advisor, Royal United Hospital Bath NHS Foundation Trust;

Mr Jon McFarlane, Project Medical Advisor, Royal United Hospital Bath NHS Foundation Trust.

Collaborating Trusts:

Dartford and Gravesham NHS Trust;

Royal United Hospital Bath NHS Foundation Trust;

Royal Cornwall Hospitals NHS Trust;

St Helens and Knowsley Teaching Hospitals NHS Trust;

University Hospital Southampton NHS Foundation Trust.

Funder

True NTH UK - a partnership between The Movember Foundation and Prostate Cancer UK

Associated research themes

Prostate cancer

Cancer survivorship

Self-management

Related research groups

Complex Healthcare Processes

Publications

Key Publication

Staff

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