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Research project: Incidental findings (IFs) from genetic tests: exploring the ethical issues and implications for practice - Dormant

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Genetic testing techniques have advanced enormously over the past few decades. It is now possible to examine large portions of a person's genetic code at costs manageable to routine NHS services. As well as diagnosing the cause of specific clinical signs and symptoms, or family histories of disease, such genetic testing will also at times find entirely unexpected, but clinical relevant information about a person, such as a future disease likelihood.

This research fellowship aims to gain an empirical and ethical insight into the experiences and attitudes of healthcare users and professionals towards incidental findings (IFs) from genetic testing, using both quantitative and qualitative research methods. This together with an analysis of relevant literature will provide novel insights into the practical and ethical issues surrounding IFs in genetic practice and allow the development of guidance on how practice should evolve as technologies increase the likelihood of IFs. 

NIHR Clinical Doctoral Research Fellowship awarded to Gillian Crawford, Faculty of Medicine, University of Southampton

Project team

Crawford G.,

Supervisors: Prof Anneke Luccassen, Dr Claire Foster, Dr Tara Clancy

Project funder

NIHR Clin Doc

Associated research themes

Genetic Testing

Related research groups

Complex Healthcare Processes
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