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Research project: NIHR Wessex Collaboration for Leadership in Applied Health Research and Care (Wessex CLAHRC) - Theme 6: Complexity, Patient Experience, Organizational Behaviour

Currently Active: 

The Wessex CLAHRC Complexity theme focuses on people with complex life-limiting conditions (non-malignant disease) and their families at end of life. Our work is aimed at better understanding the sources of disruption and complexity in interactions between patients, health professionals and healthcare services and developing tools to support more effective and appropriate navigation and utilisation of services.

For people living with conditions such as chronic heart failure, chronic kidney disease, and chronic obstructive pulmonary disease (COPD), complexity is emerging as a major problem. They experience cycles of hospital admission and discharge, supported self-care at home, and readmission as acute episodes of disease and exacerbations of symptoms occur over time. These admission-discharge-readmission cycles are common but involve patients, their significant others, and healthcare providers in what are sometimes very complex experiences of negotiating and organizing care. Towards the end of life (defined here as the last 24 months of life) these complexities become steadily more important and bring in their wake important decisions: about treatment preferences and advance care planning for patients and carers; and about understanding the impact of treatment regimens for health professionals and other agencies.



Project Team

Professor Carl May

Professor Alison Richardson

Dr Michelle Myall


Multi-Morbidity, Burden of Treatment and Complexity in Patient Experience towards End of Life One Day Event, 29 July 2014,

Chilworth Manor Hotel, Southampton.

Related research groups

Complex Healthcare Processes

Key Publication

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