NPCG2027 Long Term Conditions and Care
This module is a generic module that encourages all fields to consider the experience of the individual and their family in disease trajectory across the life span and associated health and social care needs. The learning outcomes have been broken down into generic and field specific, but it is anticipated that in field specific groups relevant content will be further explored and led by the learner, as part of the group or individually and facilitated by the teacher. To this end content and resources accessed are not exhaustive.
Aims and Objectives
This module will develop your knowledge and understanding of the holistic care of people who have long term health needs, such as living with chronic physical and / or mental health problems. This module will enable you to participate in the delivery of care which enables people and their families to live well with a long term condition. On successful completion of the module you will be able to: 1. Reflect on the lived experience of the person with a long term condition (LTC) and their journey through the age continuum 2. Evaluate the role of the nurse in partnership working to support and promote the health and well being of individuals with a long term condition 3. Discuss the nurse’s role in the assessment and management the care of people with long term conditions in different settings and as they move between different services In addition, those in the Adult field will be able to: 4. Explore the pathophysiology of long term conditions and the implications for nursing care 5. Identify the role of the adult nurse in maintenance of psychosocial well-being and the recognition of deterioration in clients with long term conditions. 6. Explore the nurses role in promoting and facilitating self care and empowerment In addition, those in the Children’s field will be able to: 4. Explore the pathophysiology of long term conditions and the implications for nursing care 5. Analyse the role of the nurse within the multidisciplinary team to promote effective transition of children and young people to adult services 6. Explore the principles of loss, grief and chronic sorrow in relation to children, young people and their families with long term conditions In addition, those in the Mental Health field will be able to: 4. Articulate the causes and consequences of long term conditions and the implications of these for nursing care 5. Identify the role of the mental health nurse in maintenance of physical health and the recognition of deterioration in clients with long term conditions. 6. Debate different strategies for communicating with people experiencing cognitive impairment as a result of a long term condition.
Generic – All pathways • Policy context for the care of patients with LTC’s • Long term conditions across the age continuum • The “Expert patient” • Genetics and genomics related to LTC’s • Exploration of the evidence, aetiology, symptoms, treatments and psychosocial management of long term conditions, including: o Chronic respiratory, endocrine and cardiac disease (Diabetes, COPD, Coronary Heart Disease) o Acquired brain injury o Neurodevelopment diseases, e.g. autistic spectrum disorders o Neurodegenerative diseases, e.g. dementias • Promotion of health and well being to ‘live well’ with a long term conditions • Introduction to the changing context of health care provision for individuals with long term health care needs to include: o Lay care o Community resources and services o Information resources • Exploration of the concept of the expert patient, self care and personalisation in relation to long term conditions and health care • The nurses role in supporting individuals and their families through the use of therapeutic interventions and therapeutic use of self (including psychotherapeutic interventions) • Positive risk taking • Telehealth • Strategies for effective communication • Assessment and management of chronic pain • Legal and ethical principles and frameworks associated with the provision of care to include: o The Children Act o Mental Capacity Act o Human rights act o Equalities Act Child – Field Contextual exploration of the above and in addition: • Continuation of education • Impact of long term health needs on family and siblings including exploration of theories of loss, grief and chronic sorrow in relation to living with a long term health condition • Transition from child to adult services • School life • Exploration of palliative and end of life care Mental Health Field Contextual exploration of the above and in addition: • Physical health assessment and interventions • Managing effective transition between services for older people with cognitive impairment • Pharmaceutical implications and effective medicines management • Concordance, empowerment and self efficacy • Exploration of palliative and end of life care Adult Field Contextual exploration of the above and in addition: • Transition from child to adult services • Occupational health needs • Managing effective transition between services for older people with cognitive impairment • Concordance, empowerment and self efficacy • Pharmaceutical implications and effective medicines management • The concept of self care in the management of a long term condition • Underpinning physiology of relevant respiratory, endocrine and cardiac disease
The use of educational technology (e.g. WordPress and Blackboard; Skype) is ensures broad access to generic and field specific resources There is a Partnerships in Care Conference Day with workshops
Learning and Teaching
Teaching and learning methods
Key note lectures Technology Enhanced Learning (TEL) Directed study Self directed
|Completion of assessment task||136.5|
|Total study time||187.5|
Resources & Reading list
Kitwood T (1997). Dementia reconsidered: the person comes first (rethinking ageing)..
Thomas B (2004). Lessons from my child- living with and loving a disabled child..
Furze, G., Donnison, J., Lewin, R. (2008). The Clinician’s Guide to Chronic Disease Management for Long-term conditions..
Cunningham C (2006). Downs syndrome an introduction for parents and carers.
Gonzalez, V. (2006). Living a healthy life with chronic conditions.
Stokes G (2000). Challenging behaviour in dementia: a person-centred approach.
Department of Health (2001). Expert Patient: A new approach to chronic disease management for the 21st century..
Crumbie, A., and Lawrence, J. (2002). Living with a chronic condition: a practitioner’s guide.
Lillyman, S., Saxon, A. (2008). Community Matrons: Caring for people with long-term conditions.
Hewitt Taylor J (2008). Providing support at home for children and young people who have complex health care needs..
Meerabeau, E., Wright, K. (2011). Long-Term Conditions: Nursing Care and Management..
Presho, M. (2007). Managing Long Term Conditions: A Social Model for Community Practice.
Nash M (2010). Physical health and well-being in mental health nursing: clinical skills for practice.
Hewitt Taylor J (2007). Children with complex and continuing health care needs: The experiences of children, families and care staff.
Nicol, J. (2011). Nursing Adults with Long Term Conditions..
Teare J (2008). Caring for children with complex needs in the community.
Department of Health (2006). Supporting people with long-term conditions to self-care.
Reed, A. (2011). Nursing in Partnership with Patients and Carers.
Edwards M (2010). Promoting psychological well-being in children with acute and chronic illness.
On line resources and field appropriate publications including links to legislation, policy and guidance from Department of Health [DH] and Local and National Government and Non Governmental Organisations at Local and National Level; blogs and video stori.
Clever H & Nicholson D (2007). Parental learning disability and children needs. Family experiences and effective practice..
Department of Health (2008). High Quality Care for All. NHS Next Stage Review Final Report. (Darzi Report).
Snoddon, J. (2010). Case Management of Long-term conditions: Principles and Practice for Nurses.
May H and Edwards P (2009). Enriched care planning for people with dementia: a good practice guide for delivering person-centred care..
Jones B (2003). Childhood disability in a multicultural society..
Price J & McNally P (2009). Palliative care for children and families.
Valentine F & Lowes L (2007). Nursing care of children and young peoples with chronic illness.
Hewitt Taylor J (2011). Working with children who need long term respiratory support.
Downs M and Bowers B (2008). Excellence in dementia care: research into practice.
Carrier, J. (2009). Managing Long Term Conditions and Chronic Illness in Primary Care.
Margereson, C., Trenoweth, S. (Eds) (2009). Developing Holistic Care for Long-term Conditions.
Department of Health (2000). The National Service Framework for CHD.
For resources which are required or considered useful for the module: key texts, text books, data books, software, web sites, other sources of related information. Description and/or list, with URL, library reference, etc.
Grinyer A (2012). Palliative and end life care for children and young people. Home, hospice and hospital..
Lorig, K. (ed) (2007). Self-management of Long-term Health Conditions: A Handbook for People with Chronic Disease:.
Department of Health (2005). Supporting people with long term conditions: An NHS and Social Care Model to support local innovation and integration.
Department of Health (2001). The National Service Framework for Older People.
Department of Health (2006). Our health, our care, our say: a new direction for community services.
|Individual Presentation (15 minutes)||100%|
Repeat type: Internal & External
Costs associated with this module
Students are responsible for meeting the cost of essential textbooks, and of producing such essays, assignments, laboratory reports and dissertations as are required to fulfil the academic requirements for each programme of study.
In addition to this, students registered for this module typically also have to pay for:
Please also ensure you read the section on additional costs in the University’s Fees, Charges and Expenses Regulations in the University Calendar available at www.calendar.soton.ac.uk.