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The University of Southampton
Clinical Ethics, Law and Society

Symposium - The Secret Life of Immortal Data Event

The Secret Life of Immortal Data
10:00 - 12:30
7 July 2020
Online event as part of the 12th Annual Web Science conference (WebSci20) workshop track

For more information regarding this event, please email Dr Faranak Hardcastle at .

Event details

We are moving towards a world in which data have a life beyond the individual; where the value and potential of data are ever-changing as technological developments bring new possibilities. This immortality of data raises new ethical and societal issues that have not yet been fully articulated, and consequently we are unprepared to deal with. The challenges of dealing with large volumes of personal data are increasingly apparent in many fields of practice, although they may manifest in different ways. Rather than addressing this within the boundaries of our own disciplines a holistic approach is needed that focuses on the commonalities in the issues that arise.

This symposium provides an opportunity to explore the challenges presented by working with big personal data from different perspectives, and stimulate debates about how we might work collaboratively to anticipate, manage and prevent future problems. The presentations and discussions will be used to prepare a summary white paper/symposium briefing document to be disseminated more widely.

This symposium draws together an exciting range of speakers from multiple disciplines and industries, to discuss the following themes:

• Data – what is it, who owns it and does ownership help decide anything?

• Consent – how do we give consent for uncertain future analyses or activities?

• Repurposing – How can we ethically and responsibly use data for purposes beyond its intended use?

There is an increasingly urgent need for engaging across stakeholders and disciplines to communicate concerns and challenges surrounding these questions and building alliances for becoming prepared for the future. Thus, this symposium aims to provide an interactive space to facilitate a dialogue between the panelists and the audience members. We encourage engagement, questions, and comments from the participants to stimulate debate.

The format of our workshop requires that our attendees have viewed the following videos beforehand:-

Richard Conway

Katherine Wright

Dee Menezes

Alan Grogan


This event is funded by IfLS and HEIF Insights Through Data

Organising Committee

Dr Kate Lyle- University of Southampton

Prof Anneke Lucassen- University of Southampton

Dr Lisa Ballard- University of Southampton

Dr Mark Weal- University of Southampton

Dr Adriane Chapman- University of Southampton

Dr George Konstantinidis- University of Southampton

Dr Faranak Hardcastle- University of Southampton

For more information and to register please visit the WebSci 20 website

Please note that we will be able to re-reimburse the fee for those that do not have access to their own funds. Please contact Faranak Hardcastle for information

COVID-19 update

This symposium was originally planned as a live event scheduled for the 28th April. Given the current coronavirus situation, we decided rescheduled the symposium as an online event as part of the 12th Annual Web Science conference (WebSci20) workshop track. We hope that you will be able to join us.

Speaker information

Prof Susan Halford ,University of Bristol,Professor of Sociology

Prof Sir Jonathan Montgomery,UCL,Professor of Healthcare Law

Katharine Wright,Nuffield Council on Bioethics,Assistant Director

Alan Grogan,Avanade-Accenture & Microsoft Business Group ,Executive

Dee Menezes,UCL Institute of Health Informatics,Data Scientist

Richard Conway,Elastacloud,Chief Executive Officer

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