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The University of Southampton
Southampton Clinical Trials Unit

Patient And Public Involvement at the Southampton Clinical Trials Unit

In April 2022, we set out our three-year strategy for patient public involvement (PPI) at the Southampton Clinical Trials Unit. Find out more on the Our PPI Strategy page.

About PPI

Patient and Public Involvement (PPI) is incredibly important to the work we do at the Southampton Clinical Trial Unit.

Trials of new treatments and clinical interventions rely on patients, carers or even healthy volunteers agreeing to take part in research and it is therefore vital that we make sure the patient voice is represented in everything we do.

A group of people in a workshop meeting

The National Institute for Health Research (NIHR) INVOLVE group defines public involvement in research as “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”

As a unit, we invite PPI representatives to sit on all our trial management and oversight groups. These representatives will give feedback and input into all sorts of decisions, from how a trial should be run, to whether the trial is asking too much of participants, and whether patient information leaflets and consent forms are understandable.

The Southampton Clinical Trials Unit is also part of the Wessex Public Involvement Network (Wessex PIN), a network of staff and public members working together to improve how the public are involved in research.

Our resources page has information and links to websites where you can find out more about PPI and what is involved in becoming a PPI contributor. There are also resources for researchers and research delivery teams who are looking to improve PPI in their projects.

If you would like to join our PPI mailing list, for updates on new PPI opportunities and to receive our quarterly newsletter, please click the link above to send us an email request.

 

Getting Involved in PPI

For Patient Participation Week in June 2021, PPI contributor Sheila Stranks told us about why she decided to get involved in PPI and the contributions she makes to several trials at the SCTU.

Read Sheila's blog here.

The SCTU’s PPI coordinator Liz Allaway also wrote about her work in public engagement and involvement with research for the University of Southampton's "Engaged Medicine" blog.

Read Liz's blog here.

If you are a patient, family member or carer and are interested in getting involved in PPI or would like to find out more about being a representative, please get in touch with our PPI co-ordinator Liz Allaway by emailing l.allaway@soton.ac.uk.

In April 2022, we set out our three-year strategy for patient public involvement (PPI) at the Southampton Clinical Trials Unit.

Read the full strategy: Southampton Clinical Trials Unit Patient and Public Involvement Strategy – 2022-2025

Our Vision:

Placing patients and the public at the centre of our trials: To include patient and public involvement (PPI) in all areas of clinical trial design, set-up, governance and dissemination at the Southampton Clinical Trials Unit (SCTU). To ensure that all PPI is meaningful, impactful, appropriate, and inclusive.

Timescale:

The document sets out our strategy to April 2025, outlining our goals for the short term (one year) and medium to long term (two to three years), as well as identifying successful outcomes and achievements. This strategy will be reviewed regularly to ensure we are meeting our goals, updating them and rescrutinising where needed.

Key Priorities:

We have used the UK Standards for Public Involvement in Research to establish the key priorities for our PPI strategy.

UK Standards for Public Involvement in Research
UK Standards for Public Involvement in Research

Read the full strategy: Southampton Clinical Trials Unit Patient and Public Involvement Strategy – 2022-2025

Our current involvement opportunities

 No current trial PPI opportunities. Please check back soon as new opportunities are posted regularly.

 

Are you a cancer patient, carer, family member or simply interested in cancer research?

We are currently looking for public contributors to join the Southern Cancer Trials Public Involvement Group and help shape the future of our cancer research and clinical trials into new cancer treatments.

If you would like to find out more, please contact Kerry Fitzpatrick (Senior CRUK Research Nurse) - K.J.Gready@soton.ac.uk or Liz Allaway (PPI coordinator for the SCTU) - L.Allaway@soton.ac.uk

PPI group flyer

If you are a patient, family member or carer and are interested in getting involved in PPI, would like to find out more about being a representative, or would like to be added to the distribution list for the SCTU newsletter and upcoming PPI opportunities, please get in touch.

PPI Coordinator:

Liz Allaway

Email: l.allaway@soton.ac.uk

 

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