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The University of Southampton
Southampton Clinical Trials Unit

Patient And Public Involvement at the Southampton Clinical Trials Unit

Patient and Public Involvement (PPI) is incredibly important to the work we do at the Southampton Clinical Trial Unit.

Trials of new treatments and clinical interventions rely on patients, carers or even healthy volunteers agreeing to take part in research and it is therefore vital that we make sure the patient voice is represented in everything we do.

A group of people in a workshop meeting

The National Institute for Health Research (NIHR) INVOLVE group defines public involvement in research as “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”

As a unit, we invite PPI representatives to sit on all our trial management and oversight groups. These representatives will give feedback and input into all sorts of decisions, from how a trial should be run, to whether the trial is asking too much of participants, and whether patient information leaflets and consent forms are understandable.

The Southampton Clinical Trials Unit is also part of the Wessex Public Involvement Network (Wessex PIN), a network of staff and public members working together to improve how the public are involved in research.

Our resources page has information and links to websites where you can find out more about PPI and what is involved in becoming a PPI contributor. There are also resources for researchers and research delivery teams who are looking to improve PPI in their projects.

If you would like to join our PPI mailing list, for updates on new PPI opportunities and to receive our quarterly newsletter, please click the link above to send us an email request.

 

Getting Involved in PPI

For Patient Participation Week in June 2021, PPI contributor Sheila Stranks told us about why she decided to get involved in PPI and the contributions she makes to several trials at the SCTU.

Read Sheila's blog here.

The SCTU’s PPI coordinator Liz Allaway also wrote about her work in public engagement and involvement with research for the University of Southampton's "Engaged Medicine" blog.

Read Liz's blog here.

If you are a patient, family member or carer and are interested in getting involved in PPI or would like to find out more about being a representative, please get in touch with our PPI co-ordinator Liz Allaway by emailing l.allaway@soton.ac.uk.

If you are a patient, family member or carer and are interested in getting involved in PPI, would like to find out more about being a representative, or would like to be added to the distribution list for the SCTU newsletter and upcoming PPI opportunities, please get in touch.

PPI Coordinator:

Liz Allaway

Email: l.allaway@soton.ac.uk

 

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