Publications

Read more about our research
The ethical challenges of diversifying genomic data: a qualitative evidence synthesis
Faranak Hardcastle, Kate Lyle, Rachel Horton, Gabrielle Samuel, Susie Weller, Lisa Ballard, Rachel Thompson, Luiz Valerio De Paula Trindade, José David Gómez Urrego, Daniel Kochin, Tess Johnson, Nechama Tatz-Wieder, Elizabeth Redrup Hill, Florence Robinson Adams, Yoseph Eskandar, Eli Harriss, Krystal S. Tsosie, Padraig Dixon, Maxine Mackintosh, Lyra Nightingale & Anneke Lucassen, 2023, Cambridge Prisms: Precision Medicine, 2
DOI: 10.1017/pcm.2023.20
Type: article
Interventions to support patients with sharing genetic test results with at-risk relatives: a synthesis without meta-analysis (SWiM)
Lisa Marie Ballard, Rebecca Band & Anneke M. Lucassen, 2023, European Journal of Human Genetics, 31(9), 988-1002
DOI: 10.1038/s41431-023-01400-1
Type: review
Access to biobanks: responsibilities within a research ecosystem
2023, Biopreservation and Biobanking, 21(3), 275-281
DOI: 10.1089/bio.2021.0172
Type: article
Ethical, legal and social issues in diversifying genomic data: literature review and synthesis
Faranak Hardcastle, Lisa Ballard, Susie Weller, Kate Lyle, Rachel Horton, Rachel Thompson, Gabby Samuel, Luiz Valério de Paula Trindade, José David Gómez Urrego, Daniel Kochin, Tess Johnson, Nechama Tatz-Wieder, Elizabeth Redrup, Florence Emilia Robinson Adams, Yoseph Eskandar, Elinor Harris, Krystal Tsosie, Padraig Dixon, Lyra Nightingale, Maxine Mackintosh & Anneke Lucassen, 2022
DOI: 10.31235/osf.io/myjtd
Type: other
Ethical preparedness in health research and care: the role of behavioural approaches
Gabrielle N Samuel, Lisa Ballard, Helena Carley & Anneke Lucassen, 2022, BMC Medical Ethics, 23(115), 1-13
DOI: 10.1186/s12910-022-00853-1
Type: article
EPPiGen: ethical preparedness for genomic medicine
Lisa Ballard, 2022
DOI: 10.5258/SOTON/PP0010
Type: creativeMediaAndArtefact
The use of reflective diaries to explore the liminal space between clinical encounters in predictive Huntington's disease clinics
Lisa M. Ballard, Shane Doheny, Anneke M. Lucassen & Angus Clarke, 2022
Type: conference
The environmental sustainability of data-driven health research
2022, Digital Health, 8
DOI: 10.1177/20552076221111297
Type: article
Beyond regulatory approaches to ethics: making space for ethical preparedness in healthcare research
2022, Journal of Medical Ethics
DOI: 10.1136/medethics-2021-108102
Type: article
Public trust and trustworthiness in biobanking: The need for more reflexivity
2022, Biopreservation and biobanking, 20(3), 291-296
DOI: 10.1089/bio.2021.0109
Type: article