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Research project: Self Management VOICED (Valued Outcomes of Importance: ConsEnsus and Disparity)

Currently Active: 
Yes

A multi-disciplinary package of work funded by The Health Foundation, started in November 2013. We will determine what self-management outcomes matter to different stakeholders (patients, families, health professionals and commissioners) so that future self-management interventions can be better targeted.

Project Overview

 Background

The rapid increase in people living with a long-term condition (LTC) has resulted in self-management (SM) becoming an important health policy agenda. SM represents an ideological shift towards increased partnership in which patients and families are given the support they need to be more confident and capable at managing their health and promoting well-being. For self-management (SM) services to be effectively commissioned, and SM be supported by health-care professionals enacted by people with LTCs and assisted by their families, there needs to be consensus amongst these stakeholders about which SM outcomes matter most.  This study therefore aims to explore current stakeholder consensus and disparity around the conceptualisation and outcomes of SM.

  • Project Aims
  • To review the literature to identify what evidence and knowledge gaps exist about the self-management outcomes that matter most patients, family care-givers, HCPs and commissioners.
  • To understand how each stakeholder group conceptualises SM outcomes and what outcomes matter most
  • To map areas of consensus and disparity between stakeholder groups in terms of the generic self-management conceptualisations and outcomes.

Three phases of research are planned

Phase 1: A systematic review of the empirical qualitative and quantitative research which explores how each of the stakeholder groups conceptualises SM and/or what outcomes matter most to each.  

Phase 2: Qualitative exploration of the perceptions of each stakeholder group. Three exemplar conditions - diabetes, colorectal cancer and stroke - are being used to explore these issues with each of the 4 stakeholder groups in Hampshire, Leeds/Bradford and London. A range of qualitative methods including focus groups, face-to-face and telephone interviews will be used and analysed using Framework Analysis.

3) Four concurrent Delphi processes will be conducted (one with each stakeholder group) to determine within and between group consensus on SM conceptualisations and outcomes.

Four nationally derived Delphi panels (patients, family caregivers, HCPs and commissioners) each with approximately purposively sampled 30 members will participate in a three round iterative Delphi process. A conceptual map of the main areas of consensus and disparity will be generated.

FUNDER: The Health Foundation

 Duration: 2013-2015

Related research groups

Active Living and Rehabilitation

Staff

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