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The University of Southampton
Macmillan Survivorship Research Group



Published Articles


Howell, D., Mayer, D.K., Fielding, R., Eicher, M., Verdonck-de Leeuw, I.M., Johansen, C., Soto-Perez-de-Celis, E., Foster, C., Chan, R., Alfano,C.M., Hudson, S.V., Jefford, M., Lam, W.W.T., Loerzel, V., Pravettoni, G., Rammant, E., Schapira, L., Stein, K.D., Kocswara, B. (2020). Global Partners for Self-Management in Cancer, Management of cancer and health after the clinic visit: A call to action for self-management in cancer care. Journal of the National Cancer Institute.  djaa083, DOI:10.1093/jnci/djaa083 

Wheelwright, S., Permyakova, N.V., Calman, L., Din, A., Fenlon, D., Richardson, A., Sodergren, S., Smith, P.W., Winter, J., Foster, C. (2020). Does quality of life return to pre-treatment levels five years after curative intent surgery for colorectal cancer? Evidence from the Colorectal Wellbeing (CREW) study. PLOS ONE. 15(14):e0231332. DOI:10.1371/journal.pone.0231332

Calman, L., Radcliffe, E., Berman, R., Demain, S., Restorick-Banks, S., Richardson, A., Wagland, R., Foster, C. (2020). The ENABLE study protocol: Understanding and characterising the value and role of self-management support for people living with cancer that is treatable but not curable. European Journal of Cancer Care. 00:e13217. DOI:10.1111/ecc.13217

Reidy, C., Foster, C., Rogers, A. (2020). A facilitated web-based self-management tool for people with Type 1 diabetes using an insulin pump: intervention developing using the behaviour change wheel and theoretical domains framework. Journal of Medical Internet Research. 22(5). DOI:10.2196/13980


Maunsell, R., Bloomfield, S., Erridge, C., Foster, C., Hardcastle, M., Hogden, A., Kidd, A., Lisiecka, D., McDermott, C.J., Morrison, K., Recio Saucedo, A., Rickenbach, L., White, S., Williams, P., Wheelwright, S. (2019). Developing a web-based patient decision aid for gastrostomy in motor neurone disease: A study protocol. BMJ Open, 9:(e032364). DOI:10.1136/bmjopen-2019-032364

Reidy, C., Foster, C., Rogers, A. (2019). A novel exploration of the support needs of people initiating insulin pump therapy using a social network approach: a longitudinal mixed‐methods study. Diabetic Medicine. 37(2):298-310. DOI:10.1111/dme.14155

Armoogum, J., Harcourt, D., Foster, C., Llewellyn, A., McCabe, C.S. (2019). The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis. European Journal of Cancer Care. 00:e13192. DOI:10.1111/ecc.13192

Sodergren, S. C., Wheelwright, S. J., Permyakova, N. V., Patel, M., Calman, L., Smith, P. W. F., Din, A., Richardson, A., Fenlon, D.,  Foster, C. (2019). Supportive care needs of patients following treatment for colorectal cancer: risk factors for unmet needs and the association between unmet needs and health-related quality of life—results from the ColoREctal Wellbeing (CREW) study. Journal of Cancer Survivorship. pp1-11. DOI: 10.1007/s11764-019-00805-6

Bradbury, K., Steele, M., Corbett, T., Geraghty, A., Krusche, A., Heber, E.D., Easton, S., Cheetham-Blake, T., Slodkowska-Barabasz, T., Muller, J., Matthias, A.M., Wilde, L.J., Smith, K., Payne, L., Singh, K., Bacon, R., Burford, T., Summers, K., Turner, L., Richardson, A., Watson, E., Winter, J., Corner, J., Foster, C., Little, P., Yardley, L. (2019). Developing a digital intervention for cancer survivors: An evidence, theory and person-based approach. npj Digital Medicine. 2(1):85. DOI: 10.1038/s41746-019-0163-4

Foster, C., Calman, L., Richardson, A., May, C.R., Rogers, A.E., Smith, P.W.F. (2019). HORIZONS protocol: a UK prospective cohort study to explore recovery of health and well-being in adults diagnosed with cancer. BMJ Open. 9:e029662. DOI: 10.1136/bmjopen-2019-029662

Frankland, J., Brodie, H., Cooke, D., Foster, C., Foster, R., Gage, H., Jordan, J., Mesa-Eguiagaray, I., Pickering, R., Richardson, A. (2019). Follow-up care after treatment for prostate cancer: evaluation of a supported self-management and remote surveillance programme. BMC cancer, 19(368):1-18. DOI: 10.1186/s12885-019-5561-0

Grimmett, C., Corbett, T., Brunet, J., Shepherd, J., Pinto, B. M., May, C. R., Foster, C. (2019). Systematic review and meta-analysis of maintenance of physical activity behaviour change in cancer survivors. International Journal of Behavioral Nutrition and Physical Activity, 16:37 DOI: 10.1186/s12966-019-0787-4

Krusche, A., Bradbury, K., Corbett, T., Barnett, J., Stuart, B., Yao, G., Bacon, R., Böhning, D., Cheetham-Blake, T., Eccles, D., Foster, C., Geraghty, A.W.A., Leydon, G., Müller, A., Neal, R.D., Osborne, R., Rathod, S., Richardson, A., Sharman, G., Summers, K., Watson, E., Wilde, L., Wilkinson, C., Yardley, L, Little, P. (2019). Renewed: Protocol for a randomised controlled trial of a digital intervention to support quality of life in cancer survivors. BMJ Open, 9:e024862. DOI: 10.1136/bmjopen-2018-024862

Howell, D., Richardson, A., May, C., Calman, L., Fazelzad, R., Moradian, S., Foster, C. (2019). Implementation of self-management support in cancer care and normalization into routine practice: a systematic scoping literature review protocol. BMC Systematic Reviews, 8:37. DOI:10.1186/s13643-019-0952-5


Cummings, A., Grimmett, C., Calman, L., Patel, M., Permyakova, N. V., Winter, J., Corner, J., Din, A., Fenlon, D., Richardson, A., Smith, P.W.F, Foster, C. (2018). Comorbidities are associated with poorer quality of life, functioning and worse symptoms in the 5 years following colorectal cancer surgery: Results from the ColoREctal Wellbeing (CREW) cohort study. Psycho-Oncology, 1-9. DOI: 10.1002/pon.4845

Sampurno, F., Zheng, J., Di Stefano, L., Millar, J. L., Foster, C., Feudea, F., Higano, C., Hulan, H., Mark, S., Moore, C., Richardson, A., Sullivan, F., Wenger, N.S., Wittmann, D., Evans, S. (2018). Quality indicators for global benchmarking of localised prostate cancer management. The Journal of Urology, 200:319-326. DOI: 10.1016/j.juro.2018.02.071

Grimmett, C., Brooks, L., Recio Saucedo, A., Armstrong, A., Cutress, R., Evans, D.G., Copson, E., Turner, L., Meiser, B., Wakefield, C.E., Eccles, D., Foster, C. (2018). Development of breast cancer choices: a decision support tool for young women with breast cancer deciding whether to have genetic testing for BRCA1/2 mutations. Supportive Care in Cancer, 1-13. DOI: 10.1007/s00520-018-4307-x

Recio-Saucedo, A., Gilbert, A. W., Gerty, S., Cutress, R. I., Eccles, D., Foster, C. (2018). "It's like we don't exist": Tailoring education for young women undergoing surgery for early-stage breast cancer. Oncology Nursing Forum, 45(2):165-175. DOI: 10.1188/18.ONF.165-175

Corbett, T., Cheetham, T., Muller, A. M., Slodkowska-Barabasz, J., Wilde, L. J., Krusche, A., Richardson, A., Foster, C., Watson, E., Little, P., Yardley, L., Bradbury, K. (2018). Exploring cancer survivors’ views of health behavior change: "Where do you start, where do you stop with everything?". Psycho-Oncology, 1-54. DOI: 10.1002/pon.4732

Foster, C., Calman, L., Richardson, A., Pimperton, H., Nash, R. (2018). Improving the lives of people living with and beyond cancer: Generating the evidence needed to inform policy and practice. Journal of Cancer Policy, 15(B):92-95. DOI: 10.1016/j.jcpo.2018.02.004

Robertson, E. G., Wakefield, C. E., Signorelli, C., Cohn, R. J., Patenaude, A., Foster, C., Fardell, J. E. (2018). Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrolment: a systematic review. Patient Education and Counseling, 1-18. DOI: 10.1016/j.pec.2018.02.001

Reidy, C., Bracher, M., Foster, C., Vassilev, I., Rogers, A. (2018). The process of incorporating insulin pumps into the everyday lives of people with Type 1 diabetes: A critical interpretive synthesis. Health Expectations, 21:714-729. DOI: 10.1111/hex.12666


Recio Saucedo, A., Gilbert, A. W., Gerty, S., Cutress, R. I., Eccles, D., Foster, C. (2017). “Stuff tailored to younger people, it’s like we don’t exist”: What young women want to know about surgery for early stage breast cancer. Oncology Nursing Forum.

Grimmett, C., Haviland, J., Winter, J., Calman, L., Din, A., Richardson, A., Smith, P.W.F., Foster, C. (2017). Colorectal cancer patient’s self-efficacy for managing illness-related problems in the first 2 years after diagnosis, results from the ColoREctal Well-being (CREW) study. Journal of Cancer Survivorship, 11(5):634-642. DOI: 10.1007/s11764-017-0636-x

Ellis, J., Boger, E., Latter, S., Kennedy, A., Jones, F., Foster, C., Demain, S. (2017). Conceptualisation of the ‘good’ self-manager: A qualitative investigation of stakeholder views on the self-management of long-term health conditions. Social Science & Medicine, 176:25-33. DOI: 10.1016/j.socscimed.2017.01.018

Frankland, J., Brodie, H., Cooke, D., Foster, C., Foster, R., Gage, H., Jordan, J., Mesa-Eguiagaray, I., Pickering, R., Richardson, A. (2017). Follow-up care after treatment for prostate cancer: protocol for an evaluation of a nurse-led supported self-management and remote surveillance programme. BMC Cancer, 17(656). DOI: 10.1186/s12885-017-3643-4

Haviland, J., Sodergren, S., Calman, L., Corner, J., Din, A., Fenlon, D., Grimmett, C., Richardson, A., Smith, P.W.F., Winter, J., Foster, C. (2017). Social support following diagnosis and treatment for colorectal cancer and associations with health-related quality of life: results from the UK ColoREctal Wellbeing (CREW) cohort study: Social support after colorectal cancer. Psycho-Oncology, 26(12):2276-2284. DOI: 10.1002/pon.4556

Grimmett, C., Pickett, K., Shepherd, J., Welch, K., Recio-Saucedo, A., Streit, E., Seers, H., Armstrong, A., Cutress, R.I., Evans, D.G., Copson, E., Meiser, B., Eccles, D., Foster, C. (2017). Systematic review of the empirical investigation of resources to support decision-making regarding BRCA1 and BRCA2 genetic testing in women with breast cancer. Patient Education Counseling. DOI: 10.1016/j.pec.2017.11.016

Corbett, T., Singh, K., Payne, L., Bradbury, K., Foster, C., Watson, E., Richardson, A., Little, P., Yardley, L. (2017). Understanding acceptability of and engagement with web-based interventions aiming to improve quality of life in cancer survivors- a synthesis of current research. Psycho-Oncology, 1–12. DOI: 10.1002/pon.4566


Foster, C., Haviland, J., Winter, J., Chivers-Seymour, K., Batehup, L., Calman, L., Corner, J.L., Din, A., Fenlon, D.R., May, C., Richardson, A., Smith, P. (2016). Pre-surgery depression and confidence to manage problems predict recovery trajectories of health and wellbeing in the first two years following colorectal cancer: results from the CREW cohort study. PLOS ONE, 11(5):e0155434. DOI: 10.1371/journal.pone.0155434

Recio-Saucedo, A., Gerty, S.M., Foster, C.L., Eccles, D.M., Cutress, R.I. (2016). Information requirements of young women with breast cancer treated with mastectomy or breast conserving surgery: A systematic review. The Breast, 25:1-13. DOI:10.1016/j.breast.2015.11.001

Foster, C., Grimmett, C., May, C.M., Ewings, S., Myall, M., Hulme, C., Smith P.W., Powers, C., Calman, L., Armes, J., Breckons, M., Corner, J., Fenlon, D., Batehup, L., Lennan, E., May, C., Morris, C., Neylon, A., Ream, E, Turner, L, Yardley, L, Richardson, A. (2016). A web-based intervention (RESTORE) to support self-management of cancer-related fatigue following primary cancer treatment: a multi-centre proof of concept randomised controlled trial. Supportive Care in Cancer, 24(6):2445-53. DOI:10.1007/s00520-015-3044-7


Myall, M., May, C.R., Grimmett, C., May, C., Calman, L., Richardson, A., Foster, C. (2015). RESTORE: an exploratory trial of a web-based intervention to enhance self-management of cancer-related fatigue: findings from a qualitative process evaluation. BMC Medical Informatics and Decision Making, 15:94. DOI: 10.1186/s12911-015-0214-y

Wagland, R., Recio-Saucedo, A., Simon, M., Bracher, M., Hunt, K., Foster, C., Downing, A., Corner, J. (2015). Development and testing of a text-mining approach to analyse patients’ comments on their experiences of colorectal cancer care. BMJ Quality & Safety. DOI: 10.1136/bmjqs-2015-004063

Boger, E., Ellis, J., Latter, S., Foster, C., Kennedy, A., Jones, F., Keller, I., Demain, S. (2015). Self-management and Self-management Support Outcomes: A systematic review and mixed research synthesis of stakeholder views. PLOS ONE, 10(7):e0130990. DOI:10.1371/journal.pone.0130990

Foster, C., Calman, L., Grimmett, C., Breckons, M., Cotterell, P., Yardley, L., Joseph, J., Hughes, S., Jones, R., Leonidou, C., Armes, J., Batehup, L., Corner, J., Fenlon, D., Lennan, E., Morris, C., Neylon, A., Ream, E., Turner, L., Richardson, A. (2015). Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management. Psycho-Oncology, 24:940-949. DOI:10.1002/pon.3747

Foster, C., Breckons, M., Cotterell, P., Barbosa, D., Calman, L., Corner, J., Fenlon, D., Foster, R., Grimmett, C., Richardson, A., Smith, P.W. (2015). Cancer survivors’ self-efficacy to self-manage in the year following primary treatment. Journal of Cancer Survivorship, 9(1):11-19. DOI:10.1007/s11764-014-0384-0

Foster, C., Myall, M., Scott, I., Sayers, M., Brindle, L., Cotterell, P., Addington-Hall, J., Hopkinson, J., Payne, S., Robinson, J. (2015). ‘You can’t say, ‘what about me?’ I’m not the one with cancer’: information and support needs of relatives. Psycho-Oncology, 24:705-711. DOI:10.1002/pon.3716


Demain, S., Boger, E., Latter, S., Hankins, M., Kennedy, A., Foster, C., Jones, F., Kellar, I. (2014). What are the outcomes of self-management that matter to stakeholders? Study protocol for the Self-Management VOICED project. Working papers in the Health Sciences, 1:7. Spring ISSN 2051-6266/20140037

Wright, P., Fenlon, D., Jones, H., Foster, C., Ashley, L., Chivers Seymour, K., Velikova, G., Okamoto, I., Brown, J. (2014). Using the Clinical Research Network for psychosocial research: lessons learned from two observational studies. BMJ Supportive and Palliative Care, 4:202-211. DOI:10.1136/bmjspcare-2012-000410


Fenlon, D., Chivers Seymour, K., Okamoto, I., Winter, J., Richardson, A., Addington-Hall, J., Corner, J., Smith, P., May, C.M., Breckons, M., Foster, C. (2013). Lessons learnt recruiting to a multi-site UK cohort study to explore recovery of health and well-being after colorectal cancer (CREW study). BMC Medical Research Methodology, 13:153. DOI:10.1186/1471-2288-13-153

Richardson, A., Wagland, R., Foster, R., Symons, J., Davis, C., Boyland, L., Foster, C., Addington-Hall, J. (2013). Uncertainty and anxiety in the Cancer of Unknown Primary patient journey: a multi-perspective qualitative study. BMJ Supportive and Palliative Care, 0:1-7. DOI:10.1136/bmjspcare-2013-000482

Eccles, S., Aboagye, E., Ali, S., Anderson, A., Armes, J., Berditchevski, F., Blaydes, J., Brennan, K., Brown, N., Bryant, H., Bundred, N., Burchell, J., Campbell, A., Carrol, J., Clarke, R., Coles, C., Cook, G., Cox, A., Curtin, N., Dekker, L.V., dos Santos Silva, I., Duffy, S.W., Easton, D.F., Eccles, D.M., Edwards, D.R., Edwards, J., Evans D.G., Fenlon, D.R., Flanagan, J.M., Foster, C. et al (2013). Critical research gaps and translational priorities for the successful prevention and treatment of breast cancer. Breast Cancer Research, 15(5), R92. DOI: 10.1186/bcr3493

Jarrett, N., Scott, I., Addington-Hall, J., Amir, Z., Brearley, S., Hodges, L., Richardson, A., Sharpe, M., Stamataki, Z., Stark, D., Siller, C., Ziegler, L., Foster, C. (2013). Informing future research priorities into the psychological and social problems faced by cancer survivors: A rapid review and synthesis of the literature. European Journal of Oncology Nursing, 17:510-520. DOI:10.1016/j.ejon.2013.03.003

Grimmett, C., Armes, J., Breckons, M., Calman, L., Corner, J., Fenlon, D., Hulme, C., May, C.M., May, C.R., Ream, E., Richardson, A., Smith, P.W.F., Yardley, L., Foster, C. (2013). RESTORE: an exploratory trial of an online intervention to enhance self-efficacy to manage problems associated with cancer-related fatigue following primary cancer treatment: study protocol for a randomized controlled trial. Trials, 14:184 DOI:10.1186/1745-6215-14-184

Hopkinson, J. B., Fenlon, D., Foster, C. (2013). Outcomes of a nurse-delivered psychosocial intervention for weight- and eating- related distress in family carers of patients with advanced cancer. International Journal of Palliative Nursing, 19(3):116-123. DOI:

Fenlon, D. Frankland, J. Foster, C. Brooks, C. Payne, S. Seymour, J. Moffatt, J. Stephens, R. Walsh, B. Coleman, P. Simmonds, P. Addington-Hall, J. (2013). Living into old age with the consequences of breast cancer European Journal of Oncology Nursing, 17(3):311-316. DOI:10.1016/j.ejon.2012.08.004


Fenlon, D.R., Richardson, A., Addington-Hall, J.M., Smith, P., Corner, J.L., Winter, J., Foster, C. (2012). A cohort study of the recovery of health and wellbeing following colorectal cancer (CREW study); protocol paper. BMC Health Services Research, 12:90. DOI:10.1186/1472-6963-12-90

Payne, S., Seymour, J., Molassiotis, A., Froggatt, K., Grande, G., Todd, C., Lloyd-Williams, M., Foster, C., Wilson, R., Rolls, L., Addington-Hall, J. (2012). An evaluation of research capacity building from the Cancer Experiences Collaborative. British Medical Journal Supportive and Palliative Care, 2:280–285. DOI:10.1136/280 bmjspcare-2012-000236

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