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The University of Southampton
Clinical Ethics and Law at Southampton

"Rapid technological advances promise big improvements in medical care. The world needs leadership in understanding and responding to the ethical and societal impact of these radical changes. CELS brings together interdisciplinary expertise to meet this need by addressing the ethical, legal and societal issues through research, education, policy engagement and public dialogue".

Professor Anneke Lucassen has been made a Senior Fellow of the PHG Foundation.

The accolade recognises individuals from across the world who have made significant professional contributions to fields closely related to the Foundation’s own policy work around genomics and biomedicine, and who have supported the Foundation’s mission to make science work for health. The PHG Foundation is a non-profit think tank with a special focus on how genomics and other emerging health technologies can provide more effective, personalised healthcare and deliver improvements in health for patients and citizens.

The latest Joint Committee guidelines on Consent and confidentiality in genomic medicine released

July 2019: This edition was written by Anneke Lucassen (Professor and honorary consultant in clinical genetics, Faculty of Medicine, University of Southampton and Wessex Clinical Genetics Service, University Hospitals Southampton, UK; and chair of the British Society for Genetic Medicine) and Alison Hall (head of humanities, PHG Foundation, Cambridge, UK; and chair of the Ethics and Policy Committee of the British Society for Genetic Medicine).

Difficult Decisions in Paediatrics Day - 11th October 2019

Exploring ethical issues and clinical decision-making for children with life-limiting illnesses. There is an appetite for a forum through which joined-up working in Wessex could be facilitated, where multidisciplinary discussions could be held and where the difficult ethical issues raised could begin to be discussed. This day aims to explore some of the most challenging discussions that need to be had in paediatrics and discuss if and how a regional paediatric Clinical Ethics Committee might help future cases.

Dr Anneke Lucassen presented at the 'Genomics Summit' in Parliament advocating for greater context-oriented genomic approach related to genetic disease

'Genomics Summit’ held in Parliament on 31 October 2018, organised jointly by the House of Commons Science & Technology Committee and the Department of Health and Social Care. The event followed on from the Committee’s Report on ‘genomics and genome-editing in the NHS’, the Government’s response to the Committee Report, and the launch of the Genomic Medicine Service in NHS England

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