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Research project: Community-based Volunteer-led Support for Family Caregivers Caring for a Relative or Friend with Palliative and/or End-of-Life Care Needs at Home (Co-Care)

Currently Active: 
Yes

Research Project: The Co-Care programme development study will provide preliminary insights to support a proposal for a larger programme of research the aim of which is to develop, implement, evaluate and disseminate a community-based, volunteer-led model of support for family caregivers providing care at home for relatives or friends at or near the end of life. This proposal will be submitted to the NIHR's Programme Grants for Applied Research funding stream in 2016.

 

In the Co-Care programme development study we will build on evidence that shows that receiving support such as befriending or home visitation may under certain conditions benefit caregivers (and care recipients), and use this information to develop a proposal to design, implement and evaluate a model of community-based volunteer-led support for family caregivers.

The Co-Care programme development study will address the following questions:

  • What does existing empirical evidence suggest is an effective model of community-based volunteer-led support for informal caregivers providing palliative and/or end-of-life care for relatives and friends in the community?
  • What does the experience of key stakeholders suggest is an effective model of community-based volunteer-led support for informal caregivers providing elderly care and care for long-term conditions for relatives and friends in the community, including palliative and/or end-of-life care?

It is composed of three sub-projects:

1) A scoping review of existing empirical evidence on the effectiveness of strategies to support family caregivers providing palliative and/or end-of-life care for relatives or friends in the community.

2) A nationwide online survey of community-based, volunteer-led initiatives to support family caregivers providing palliative and/or end-of-life care in the home.

3) Linked focus groups and workshops exploring the perspectives, experiences and expertise of:

  • People who are caring for (or who have cared for) a relative or friend at home
  • Volunteers who work with people who are caring for (or who have cared for) a relative or friend at home
  • People who help to organise voluntary support in the community family caregivers, existing volunteers.

 

Project Funder

National Institute for Health Research Programme Grants for Applied Research (NIHR PGfAR)

Project Team

 

Dr Aliki Karapliagkou (Research Fellow)

Prof. Dame Jessica Corner, Dr Christopher Bailey, Prof. Ann Bowling, Paul Cronin, Dr Sue Duke, Dr Adam Geraghty, Prof. Claire Hulme, Prof. Carl May, Prof. Elaine McColl, Prof. Michael Moore, Alan Parker, Prof. Alison Richardson, Dr Heather Richardson, Prof. Anne Rogers

 

Related research groups

Complex Healthcare Processes
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