Research project: Measuring and evaluating end-of-life care in services for adults with learning disabilities in the UK
This 30 month study aims to understand the end of life care phase of adults with learning disabilities living in LD residential settings. Many people with learning disabilities will enter long term care, and more so with increasing age. Yet, whilst much attention has been given to understanding the quality of life of people with learning disabilities in such settings, very little is known about where and how they are supported at the end of their lives. A survey of learning disability service providers, incorporating VOICES (a nationally recognised approach to evaluating end-of-life) will aid our understanding of this important and significant issue, and critically will allow some comparison with the wider population.