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Research project: Parental experiences of care for children with a complex illness

Currently Active: 
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In 2008, the Department of Health End of Life Care Strategy in England and Wales specified the development and implementation of a national programme of surveys of bereaved relatives as a key priority in relation to the development of quality and outcome measures. The VOICES questionnaires, first developed by Addington-Hall in 1995, have been adopted for this programme because of the evidence that they are provide a valid and reliable method to collect information on the quality of palliative and end of life care.

The overall aim of this research is to investigate:

1) what aspects of care are important to parents

2) to develop a measure to assess experiences in systematic way, by adapting the VOICES questionnaire.

Themes

  • Paediatric Palliative Care
  • Child
  • Quality of care

 

Related research groups

Complex Healthcare Processes
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