Skip to main navigationSkip to main content
The University of Southampton
Health SciencesOur research

Research project: Understanding the workload and burdens for informal carers of people treated in Stroke Early Supported Discharge

Currently Active: 
Yes

 Early Supported Discharge (ESD) is effective and acceptable for people with stroke, but we know very little about the impact of ESD on family caregivers. This study will determine the workload and impact of caring for a family member in the first weeks after stroke and identify their perceptions of how ESD services could support caregivers better.

 Research Questions:

  • 1. What is the perceived workload (duration) of the care and rehabilitation tasks undertaken by caregivers during stroke ESD?
  • 2. What is the perceived impact/burden of those tasks on caregivers?
  • 3. Is there any relationship between workload/burden and a) stroke severity of the cared for person b) generic measures of carer strain
  • 4. How do people manage the work of supporting someone during ESD?
  • 5. What factors make it easier or more difficult to support/care for someone during stroke ESD ?
  • 6. How could ESD services be delivered differently to reduce the burden on carers?

 

Phase 1: Quantitative data

1) Research questions 1, 2 and 3 will be answered using short structured interviews completed with up to 30 caregivers to numerically estimate the workload (duration) and perceived impact of supporting someone in ESD and comparing this data with routinely collected data on a) patient impairments and disabilities and b) carer strain

 

Phase 2: Qualitative methods:

3) Research questions 4-6 will be answered by qualitative semi-structured interview with 15-20 carers about one month after the end of ESD to gather in-depth data on their experiences of providing care and rehabilitation support during ESD, particularly focussing on how they manage the workload, what burdens this generated for them and how ESD might be enhanced to reduce their strain.

Associated research themes

Neuro-rehabilitation.

Neuro-Rehabilitation Project Cluster

Related research groups

Active Living and Rehabilitation
Share this research project Share this on Facebook Share this on Twitter Share this on Weibo
Privacy Settings