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The University of Southampton
Clinical Ethics and Law at SouthamptonResearch

Research project: Framing the trajectories of decision-making in the context of predictive and prenatal genetic and genomic tests

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Prof Angus Clarke is the chief investigator of this Economic and Social Research Council (ESRC) study to identify the factors that influence the decisions made by genetic counselling patients about proceeding with genetic tests. Southampton is one of several sites recruiting participants to this study.  

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Most genetic tests are carried out to confirm a diagnosis. Some people are offered genetic tests for reasons that are only partly medical and where the patient’s personal views and preferences are as important (if not more important), than any medical reasons. The purpose of this research is to understand how patients make these decisions.

The study aims to identify the factors that influence the decisions made by genetic counselling patients about proceeding with genetic tests. It will also examine to what extent a patient’s decision-making processes are shaped by their conversation with the healthcare professionals in clinics, and to what extent factors from outside the clinic influence this decision.

For further information please contact Dr Lisa Ballard

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