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Research project: Evaluation of the innovative hospice services for non-cancer patients - Dormant - Dormant

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The aim of this project is to conduct a formative evaluation (using case-study methodology) of the hospice services for non-cancer patients funded by the St James' Place Foundation grant-making programme in order to inform the future development of services for non-cancer patients by independent hospices.

Overview

The independent hospices in the UK are part-funded by the NHS, but receive most of their income from their local communities. Their independence can enable them to be innovative and flexible in a way that would be difficult for a NHS service. 'Help the Hospices', a charity supporting the work of hospices, worked with the St James' Place Foundation to secure funding from the Foundation for a three year programme of grants to enable independent hospices to develop innovative services for non-cancer patients. The level and length of funding means these are primarily pilot studies. The funding provided an opportunity to encourage hospices to develop original hospice-based interventions for particular groups of non-cancer patients. This study evaluated the services funded by the Foundation.


Objectives

  • To describe the genesis of the funded studies, their stated aims, their 'journeys' to implementation, and the shape of the final services.
  • To identify the barriers and facilitators to the successful establishment of the non-cancer services, and to the successful recruitment of patients.
  • To establish the acceptability of the services to users (patients, family members) and to other health professionals (in the community and in local hospitals, depending on diagnosis).
  • To describe the attitudes of senior hospice personnel to non-cancer palliative care, and to compare this to the attitudes of a nationally representative sample of senior hospice personnel from independent hospices.

 

Project team

Julia Addington-Hall

Project funder

Help the Hospices

Related research groups

Complex Healthcare Processes
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