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The University of Southampton
Clinical Ethics and Law at Southampton

"Rapid technological advances promise big improvements in medical care. The world needs leadership in understanding and responding to the ethical and societal impact of these radical changes. CELS brings together interdisciplinary expertise to meet this need by addressing the ethical, legal and societal issues through research, education, policy engagement and public dialogue".

Secret Life of Immortal Data Symposium

In July, we ran an online symposium on ‘The Secret Life of Immortal Data’ as part of the WebSci 2020 Conference. The event stimulated some very thought-provoking and insightful conversations about the challenges presented by emerging forms of personal data that have a life beyond their initial construction. We explored how we might prepare for future consequences of large data collections and how it might be necessary to rethink our understanding of issues of consent, ownership, ethics and privacy.

Dr Angela Fenwick retires!

Angela retired on 30th June 2020. We at CELS will all miss her and wish her every happiness for the future. We had a virtual leaving party and hope to catch up with her in person in the not too distant future!

CELS Response to COVID-19 pandemic

The CELS team has recently redirected some of its ongoing research to COVID-19 (Coronavirus disease 2019) related work. We are interested in the ethical issues that were anticipated at the start of the pandemic – how these were debated and responded to by, for example, professional guidance and academic discourse, but also in the longer-term consequences of the pandemic on society

COVID-19 and ‘Big Qual’ - Dr Susie Weller

This post is written by Prof Lynn Jamieson along with Dr Emma Davidson (University of Edinburgh) and Prof Rosalind Edwards and Dr Susie Weller (University of Southampton). The blog discusses the potential of qualitative secondary analysis, and in particular ‘big qual’ analysis, for helping to overcome the restrictions placed on qualitative work during the global pandemic. In so doing, Lynn and colleagues draw on a recent ESRC National Centre for Research Methods study – Working across qualitative longitudinal studies: A feasibility study looking at care and intimacy.

Engaging with parents of the future about the offer of genetic screening before pregnancy

Lisa Ballard and her co-authors hope their findings about the consent process for genomic testing will inform the new NHS Genomic Medicine Service. The consent process for genomic testing is complex and involves communicating multiple considerations. Lisa tells us more about her recent research into the experience of patients who took part in the 100,000 Genomes Project, and what we can learn from them

GEP fellow, Dr Lisa Ballard, publishes research on patient experience

Lisa Ballard and her co-authors hope their findings about the consent process for genomic testing will inform the new NHS Genomic Medicine Service. The consent process for genomic testing is complex and involves communicating multiple considerations. Lisa tells us more about her recent research into the experience of patients who took part in the 100,000 Genomes Project, and what we can learn from them

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