Research project: Communication of results from the 100,000 Genomes Project to relevant others.
The result of an individual’s genomic test can sometimes also predict risks in close relatives but research has shown that patients do not always communicate their results to these relatives. This means that relatives who might benefit from testing, screening programs, or preventative treatment do not get to hear about these possibilities. Several interventions designed to aid family communication of genetic results exist, although most have proven ineffective and have limited theoretical underpinning.
