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The University of Southampton
Clinical Ethics and Law at SouthamptonResearch

Research project: Communication of results from the 100,000 Genomes Project to relevant others.

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The result of an individual’s genomic test can sometimes also predict risks in close relatives but research has shown that patients do not always communicate their results to these relatives. This means that relatives who might benefit from testing, screening programs, or preventative treatment do not get to hear about these possibilities. Several interventions designed to aid family communication of genetic results exist, although most have proven ineffective and have limited theoretical underpinning.  

DNA

The aim of this qualitative study is to explore ways of increasing patients’ capability, opportunity, and motivation to encourage communication of relevant genetic test results, and ameliorate potential concerns or barriers surrounding such communication. This will be achieved through conducting both structured and semi-structured interviews with patients, to inform the development of an intervention based on the latest behaviour change theories and frameworks.

This research is funded by Health Education England under their Genomics Education Programme Fellowship Scheme.

If you would like to take part or if you have any queries, please contact research fellow and health psychologist Dr Lisa Ballard at L.Ballard@soton.ac.uk or on 023 8120 5082.

 

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