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Associate Professor Tracy Long-Sutehall PhD, MSc, BSc (hons), C.Psychol

Associate Professor

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Tracy is a member of the Complex Healthcare Process Research Group with Health Sciences at the University. Her research has generated an extensive body of knowledge related to tissue and organ donation, post-death use of the body, end-of-life decision making, policy and practice, dying trajectories in critical and high care environments and death and dying.

“Knowing is not enough; we must apply. Willing is not enough; we must do” Johann Wolfgang von Goethe.

After completing general and paediatric nurse training, I specialised in Paediatric Intensive Care at Great Ormond Street Sick Children's Hospital, London. After 15 years in nursing I completed degrees in Psychology and Health Psychology and spent five years undertaking clinical work and research as a Transplant Psychologist at The Royal Brompton and Harefield Hospital NHS Trust [Harefield site] Middlesex, UK. 

The last 12 years have been spent as a researcher investigating issues related to: organ and tissue donation; organ retention; post death use of the body; end-of-life decision making; dying trajectories in critical and high care environments and death and dying.

In 2007 I was invited to work with National Health Service Blood and Transplant [NHSBT] Tissue Services as a consultant to support the development of their family care initiative and review their consent procedures. I am very committed to this work as I have seen the desperate need for organ and tissue donation during my time at Harefield Hospital and the benefit that transplantation can bring to individual lives.

In 2010 I was honoured to have three articles cited in the RCN's survey of most influential nursing research in the past 50 years.

Advisory group membership:

European Deceased Donation Working Party [2011-current]

NHS BT- TEPSOD working party [Tissue and Eye donation in solid organ donation] [2011-current]

NHS BT Tissue Services Donor Advisory Group [2014-current]

NHS BT National Consent Working Party [2011-2012].

Research interests

My specific areas of research include:

  • Decision making and behaviours related to organ and tissue donation
  • Public awareness initiatives (SHA Tissue and Organ Donation pdf, and Tissue Donation NHS South Central pdf)
  • Organisation, situational and contextual factors impacting the consent process in organ and tissue donation
  • Interpersonal; cultural; societal; interactional; situational; institutional; and ethical systems/processes/factors that impact the end of life decision making of bereaved family members
  • End of life care options
  • Decision making and behaviours of health care professionals tasked with operationalizing the systems that underpin end of life care initiatives
  • Withdrawal of treatment in critical care and high care arenas
  • Dying trajectories in the 21 Century

Research group

Complex Healthcare Processes

Research project(s)

Barriers to Tissue Donation: What cognitive and emotional associations do bereaved family members bring to the multi-tissue and corneal request interview? - Dormant

Qualitative study exploring the experiences of bereaved family members who were approached and asked to consider multi-tissue and eye donation.

Parental experiences of care for children with a complex illness

End of Life Care in Intensive Care Settings: a case study approach - Dormant

A review of deaths occurring in Intensive Care Units (ICUs) in England, Wales and Northern Ireland between 1995 and 2001 indicate that 30.8% of patients died prior to discharge from hospital

Exploring the views and experiences of critical care nurses when involved in providing and facilitating end of life care - Dormant

This study aims to explore the role of the critical care nurse during end of life care.

Exploring the end of life decision-making and hospital experiences of families who did not donate organs or tissues for transplant operations - Dormant

Explores the end of life decision-making and hospital experiences of bereaved adults with whom organ and tissue donation was discussed and who declined donation.

An investigation about transferring patients in critical care home to die: experiences, attitudes, population characteristics and practices

Progress has been made towards the policy imperative of enabling patients to die in their preferred place of care. However, there has been to consideration of how this might apply in the context of those dying in critical care environments, including what those preferences might be, and practices to enable such preferences to be met.

What are the barriers to organ donation and the factors that impact the decision of the bereaved family to give consent to organ donation?

Strategic development of research links, and leadership of academic initiatives with the National Health Service Blood and Transplant [NHSBT] Tissue Services division.

Chair of Wessex Research Active Hospice Development Group (WRAhdG).

Research lead: Organ and Tissue Donation decision making; End of life in high technology environments.

Supervision:  PhD 

  1. Organ donation behaviour: understanding the factors stimulating the decision to register as a potential organ donor in Malaysia
  2. A study of the lived experiences of women during the menopausal transition from a male and female perspective.
  3. An investigation into midwifery practice and decision making during the second stage of labour
  4. Developing Quality Outcomes for Children's Community Nursing                                               
  5. A study to explore the concept of recovery following (complete) Cytoreducitve Surgery Pseudomyxoma Peritonei.
  6. Mindfulness in Dialectical Behaviour Therapy: An IPA study of patient and practitioner experiences
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Book Chapters

  • Sque, M., & Long-Sutehall, T. (2011). Bereavement, decision-making and the family in organ donation. In A-M. Farrell, D. Price, & M. Quigley (Eds.), Organ Shortage: Ethics, Law and Pragmatism (pp. 67-85). (Cambridge Law, Medicine and Ethics; No. 13). Cambridge, GB: Cambridge University Press.
  • Sque, M., Frankland, J., Long-Sutehall, T., Addington-Hall, J., & Mason, J. (2011). Seeking normality: Life on the kidney transplant list. In W. Weimar, M. Boss, & J. J. V. Buschbach (Eds.), Organ Transplantation: : Ethical, Legal and Psychosocial Aspects. Expanding the European Platform Lengerich: Pabst.



Working Paper

Current teaching and education is focussed on supporting students in developing research skills to underpin their clinical practice and academic studies. I teach on pre/post qualifying programmes and postgraduate programmes as a means of engaging students in both the art and science of research, articulating the importance of such skills to their future professional development and career progression.

Mentoring and supervisory roles at M and PhD level allow me to share my subject and methodological expertise whilst guiding novice researchers in their development.

Course and programme links

B735 BN (Hons) Bachelor of Nursing (Child)

PG Dip Nursing (Adult, Child or Mental Health)

MRes Clinical and Health Research

Postgraduate Study Options

Associate Professor Tracy Long-Sutehall
University of Southampton Health Sciences Building 67 Highfield Southampton SO17 1BJ

Room Number: 67/4005

Associate Professor Tracy Long-Sutehall's personal home page
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