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The University of Southampton
Macmillan Survivorship Research Group

MSRG Data Protection Statement

 

 

Data Protection Statement for Macmillan Survivorship Research Group

The Group conducts publicly-funded research to improve health, care and services. Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the relevant organisational policies and procedures (e.g. UK Policy Framework for Health and Social Care Research). We also ensure that when we use personally-identifiable information from people to conduct research studies and analyse research findings, this usage is limited to achieving results that can benefit the public good. Consequently, your rights to access, change, or remove your information provided during our studies may be limited. In particular, limitations may apply if we need to manage your information in specific ways to ensure the research findings are reliable and accurate. If you withdraw from a study, for example, we will keep the information about you that we have already obtained solely for the purpose of generating reliable and accurate research findings. To safeguard your rights, we will only ever use the minimum personally-identifiable information possible to achieve our research objectives.

If you wish to raise a complaint on how we have handled your personal data, you can contact us at msrg@soton.ac.uk and we will investigate the matter in the first instance.

Where the Group carries out research on behalf of the University of Southampton, you can also contact the University’s Data Protection Officer at data.protection@soton.ac.uk The University’s data protection policy is available at: https://www.southampton.ac.uk/legalservices/what-we-do/data-protection-and-foi.page

Where the Group carries out research on behalf of the University Hospital Southampton NHS Foundation Trust (UHSFT), you can also contact the Data Protection Office at dataprotection@uhs.nhs.uk  or 020 8120 4743. Further information is available at: http://www.uhs.nhs.uk/ClinicalResearchinSouthampton/Public-and-patients/Get-involved/http://www.uhs.nhs.uk/ClinicalResearchinSouthampton/Public-and-patients/Get-involved/General-Data-Protection-Regulation.aspx    

If you are not satisfied with these responses or believe we are processing your personal data in a way that is not lawful, you can complain to the Information Commissioner’s Office (ICO). The ICO is the UK data protection regulator/supervisory authority. For further information on your rights and how to complain to the ICO, please refer to the ICO website: https://ico.org.uk/

A list of the research studies carried out by the Macmillan Survivorship Research Group on behalf of UHSFT, or on behalf of the University of Southampton, are provided below.

Studies sponsored by University Hospital Southampton NHS Foundation Trust (UHSFT)

ColoREctal Wellbeing (CREW) cohort study
Funded by: Macmillan Cancer Support

HORIZONS Programme
Funded by: Macmillan Cancer Support

RCRT: Feasibility of establishing a cohort of lung cancer patients treated with curative intent [CIn] radiotherapy [RT] to gather patient reported outcomes
Funded by: Roy Castle Lung Cancer Foundation

Breast Cancer Choices (formerly YoDA BRCA) Genetic testing decision aid for young women
Funded by: Breast Cancer Now

RESTORE – online resource Web-based intervention to support people with cancer related fatigue
Funded by: Macmillan Cancer Support

Feasibility of establishing a cohort of lung cancer patients to gather patient reported outcomes
Funded by: The Roy Castle Lung Cancer Foundation


Studies sponsored by University of Southampton
 

TrueNTH Global Registry- Prostate Cancer Outcomes
Funded by: Movember Foundation

Post-Doctoral Fellowship - Development of a conceptual model and intervention to promote sustained long-term, physical activity after cancer
Funded by: National Institute of Health Research

Supported self-management in people living with cancer that cannot be cured: understanding and characterising its value and role
Funded by: Macmillan Cancer Support

Development and pilot testing of a web-based decision aid for people with motor neurone disease considering a gastrostomy feeding tube
Funded by: Marie Curie and the Motor Neurone Disease Association

 

MSRG Data Protection Statement v1.0
15Feb2019


 
 

 

 

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