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The University of Southampton
Macmillan Survivorship Research Group

Minority ethnic patients' participation in cancer research

Involving people of diverse ethnicities in cancer research: An exploration of experiences, attitudes and barriers (BME study)

Introduction

People affected by cancer from diverse ethnic minority backgrounds are less likely to take part in cancer research in the UK. This is of concern as cancer research is integral to developments in cancer therapies and treatments. Consequently, patients from diverse ethnic minority backgrounds may not be benefiting from the results of research. Whilst we are aware that participation rates are poor for ethnic minorities, little is known in the UK about reasons why this is. Macmillan Cancer Support have therefore commissioned a study to find out the answers to the following questions:

Methods

The study adopted an exploratory, qualitative approach, employing semi-structured and narrative interviews. 22 cancer patients and 8 research nurses were recruited from Acute NHS Trusts and through community organisations, such as support groups. A purposive sample was used to ensure representation of different ethnicities (South Asian, Chinese, Black African / Black Caribbean), languages (Hindi, Gujarati, Urdu, Punjabi, Cantonese, Mandarin, English), research experience (novice; involved) and gender. Data were analysed using thematic analysis.


Outputs

Wright, D., Foster, C., Gunaratnam, Y. & Okamoto, I. (2008) Involving people of diverse ethnicities in cancer research: Identifying experiences, attitudes and barriers to participation. Psycho-Oncology, 17(6), S48. 10th World Congress of Psychosocial Oncology, Madrid, 2008.
Wright, D., Foster, C., Gunaratnam, Y. & Okamoto, I. (2008) Involving people of diverse ethnicities in cancer research: Identifying experiences, attitudes and barriers to participation. October 2008, National Cancer Research Institute Annual Conference, Birmingham.
Macmillan report for this project is now available.


Contact

If you have any queries regarding this study please contact the MSRG secretary on 02380 596885, or email msrg@soton.ac.uk

Minority participation research
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