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Macmillan Survivorship Research Group

Feasibility of establishing a cohort of lung cancer patients to gather patient reported outcomes

Funder: The Roy Castle Lung Cancer Foundation

Chief Investigators: Professor Claire Foster, Dr Lynn Calman

Researchers: Dr Lynn Calman, Dr Rebecca Foster

Lung cancer is the second most commonly diagnosed cancer in the UK, with over 40,000 people diagnosed every year. There are two main types of lung cancer: small cell lung cancer (around 15%) and non-small cell lung cancer (around 85%). Non-small cell lung cancer can often be treated effectively with surgery and, in 2010, 14% of lung cancer patients underwent surgical resection (tumour removal) with curative intent (CI). Surgical resection offers patients a much improved chance of living for at least five years; however, little is known about the impact of lung cancer surgery on patients’ long-term health and well-being. As a result, there is insufficient evidence to guide the development of clinical services for lung cancer survivors following surgical treatment.

This study aims to test the feasibility of following, over time, a large cohort of lung cancer patients who have been treated surgically with CI. Data, including patient reported outcome measures (PROMs), will be gathered prospectively to build up a picture of lung cancer survivors’ experiences, needs and patterns of recovery. The study’s findings will inform improvements in care and support for this group. The feasibility study will, in particular, explore methodological issues such as participant recruitment and retention, appropriate outcome measures and acceptability of study procedures. It will be conducted on a smaller scale than the large cohort study but will recruit patients from a number of different geographical locations, clinical settings and ethnically diverse populations the UK. Study participants will be recruited prior to having surgery and will complete questionnaires before surgery and three months after surgery. A sub-sample of participants and a number of clinicians involved in recruiting participants will be interviewed to help evaluate study processes.

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