The University of Southampton
Complex Healthcare Processes

Cancer Survivorship and End of Life Care

Our research focuses on understanding and improving the lives of people affected by cancer (including those at increased risk), life-limiting conditions, and those at the end of life. Through our research we seek to make a positive difference to people affected by cancer and life-limiting illness, their families, communities and the health care professionals who support them.

Our research aims to significantly advance understanding of the complex recovery and care experiences of people affected by cancer (including colorectal, prostate, lung and breast cancers, the less common cancers and cancer of unknown primary), life limiting conditions and those at or near the end of life. We recognise the vital contribution made by families, friends and communities in providing care and support. We develop and test novel interventions to improve lives and inform improvements in health care. This includes developing a range of approaches to engaging, communicating and supporting people, their families and health professionals in making important decisions in the face of uncertainty. Our research includes exploratory and definitive trials, large prospective cohorts, qualitative research, and developing and applying novel methods of analysis to large datasets.

Overview

Staff

PhD Students

Clinical Academics

Visiting Fellows

Our research is making a positive difference to people affected by cancer (including those at increased risk), life-limiting conditions, and those at the end of life, their families, communities and the health care professionals who support them by:

Cancer Survivorship and End of Life Care
Cancer Survivorship and End of Life Care

• Advancing understanding of the nature and complexity of recovery in those who have cancer through large prospective cohort studies

• Developing and testing new forms of self-management support for people affected by cancer and life-limiting conditions

• Developing and testing new approaches to engaging with and supporting people involved in complex decision making

 

• Advancing understanding of patient outcomes and experiences by exploiting large datasets

• Characterising factors that impact on quality of care and choices for those in the last year of life

• Advancing understanding of the best ways to increase rates of organ and tissue donation and supporting family decision making

Partnerships

Macmillan Survivorship Research Group

Macmillan Survivorship Research Group

The Macmillan funded MSRG research programme is designed to inform the development of more efficient and effective services to support survivors and enhance their return to fulfilling lives.

TrueNTH Prostate Cancer UK

TrueNTH

TrueNTH partnership programmes

20 November 2017

Process of measuring quality of life

University Hospital Southampton is acting as one of 5 pilot sites t...

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13 November 2017

Bowel cancer patients without vital social...

Bowel cancer patients who lack a key type of social support are mor...

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Staff Member Primary Position
Lucy Brindle Associate Professor in Early Diagnosis Research
Lynn Calman Senior Research Fellow
Natasha Campling Research Fellow
Anne-Sophie Darlington Associate Professor
Amy Din Senior Research Assistant
Faye Doyle  Programme Manager
Sue Duke Associate Professor
Claire Foster Professor of Psychosocial Oncology and Cancer Survivorship and End of Life Care research lead
Rebecca Foster Research Fellow
Jane Frankland Senior Research Fellow
Chloe Grimmett Senior Research Fellow
Dr Nicola Jarrett Deputy Programme Lead (MPhil/PhD) and Lecturer in Health Sciences
Tracy Long-Sutehall Associate Professor
Elaine Lennan Consultant Nurse
Johanna Naoyan Research Fellow
Dr Duncan Randall Principal Teaching Fellow
Alison Richardson Clinical Professor in Cancer Nursing and End of Life Care
Sam Sodergren Research Fellow Patient Reported Outcome Assessment, Study Co-ordinator for the development of EORTC Quality of Life Modules
Sophia Taylor Senior Research Assistant
Kay Townsend Lecturer in Cancer Care
Josh Turner Research Fellow
Richard Wagland Senior Research Fellow
Sally Wheelwright Senior Research Fellow
Theresa Wiseman Clinical Professor of Applied Health Research in Cancer Care
Jane Winter Research Fellow
Student Name Topic 
Abbot, Amelia Risk management by carers of people with dementia
Ab Latiff, Dilla Syadia Organ donation behaviour: understanding the factors stimulating the decision to register as a potential organ donor in Malaysia

Agyemang, Linda Serwaa

How can health professionals support decision making in women with breast cancer in West Africa?/td>
Al Habsi, Raya Said School-based intervention to enhance self-management among adolescents with type 1 Diabetes Mellitus
Althagafy, Mohammed Mostafa Public information for preventing and early detection of oral cancer in Saudi Arabia
Alqahtani, Qamra Muaikel Childhood cancer survivors and their parents experience of managing cancer related fatigue
Alshawabkeh, Hisham Collaboration between GPs and specialist cancer teams to improve dialogue along the patient pathway
Andrews, Nicola Multidisciplinary team involvement in advance care planning for older people in care homes
Angior, Chukwuma Care of the elderly in Nigeria
Attallah, Dena Nurse sensitive outcomes in ambulatory chemotherapy
Aze, Daniel Exercise in patients with advanced cancer
Bailey, Sarah A feasibility and acceptability study and qualitative process evaluation of a coping intervention for recurrent miscarriage
Bennett, Helen Parent's perceptions and experiences of advance care planning for children with life-threatening and life-limiting illness
Catwell, Lorraine Perceptions and management of lung cancer
Chapman, Suzanne Research around the needs of people with persistant pain as a consequence of cancer or its treatment in those living beyond cancer (cancer survivorship)
Clark, Louise Julia Exploring the features of depression in people with aphasia following stroke: Implications for clinical practice
Dawson, Camilla Clare Development of a model of speech and language therapy in people with head and neck cancer
Din, Amy Understanding healthful behaviours in colorectal cancer survivors and designing an intervention to support positive lifestyle change after diagnosis
Downes, Samuel Understanding patient experiences of rare cancer: pseudomyxoma peritonei
Gray, Carol A longitudinal exploration into the needs and preferences of older people approaching end of life in the community, and if these change over time
Hasliza, Wan Narratives of breast cancer decisions in Malaysia
Hibbert, Denise Quality of life in a Saudi population undergoing Curative Surgery and Radiotheraphy for Rectal Cancer in a Tertiary Referral Centre
Holley, Denise An exploration of coping in parents whose child with cancer is at the end of life
Howard-Jones, Gilly An exploration of coping in parents whose child with cancer is at the end of life
Hutt Greenyer, Corinne An exploratory study into the impact of bereavement on how people organise and go about their daily routines
Liao, Weiqi  Exploring the relationship between socioeconomic status, risk factors and typical pathways to late cancer diagnosis
Lin, Yanxia Family narratives of the decision to transfer dying patients home from CCU
Lippiett, Kate Treatment burden in patients with chronic obstructive pulmonary disease and lung cancer
Madechangu, Isabel Validation of lung cancer risk indicators and development of a triage system for Chest Clinic referrals suspicious for lung cancer
Masters, Jayne Understanding variations in the management of patients with heart failure
Yvonne Middlewick A study of the lived experiences of women during the menopausal transition from a male and female perspective
Mitchell, Paula Ann Collaboration between GPs and specialist cancer teams to improve dialogue along the patient pathway
Muoni, Tamburai Ethics and litigation in midwifery
Myhill, Kathryn How men manage the experience of trans-rectal biopsy
O’Connor, Lindsay Treatment burden in people with a brain tumour from the perspective of bereaved carers
Nash, Kate An investigation into midwifery practice and decision making during the second stage of labour
Pritchard, Jane An exploration of the perceptions of younger people with dementia about hope
Reed, Sarah What are the experiences of asthma support in infant school settings from children, parental, school staff and health care professionals perspectives in order to inform an implementation strategy for recent changes in statutory guidance?
Sandsund, Catherine Alexandra Rehabilitation therapy interventions in people with advanced lung cancer
Shrewbridge, Amanda Decision making about treatment in women with breast cancer  of West African origin
Stapleton, Sarah The impact of novel antitumour molecularly targeted therapeutics on cognitive function in patients with advanced cancers participating in Phase I clinical trials
Styles, Lois Alice Narratives of advanced alcohol related liver disease 
Tavares, Nuno Caixinha End of life in chronic obstructive pulmonary disease
Van der Geest, Ivana Long-term experiences of parents and physicians with palliative care in pediatric cancer patients
Westwood, Richard Frederick Spirituality and mental health nursing
Wheelwright, Sally A psycho educational intervention for patients with cancer cachexia and their informal care givers

Dr Naomi Farrington, Clinical academic fellow, University Hospital Southampton NHS Foundation Trust

Dr Elaine Lennan, Consultant chemotherapy nurse, University Hospital Southampton NHS Foundation Trust

Dr Luise Marino, Visiting Post doctoral paediatric dietician, University Hospital Southampton NHS Foundation Trust

Dr Emma Murphy, Post-doctoral researcher, University Hospital Southampton NHS Foundation Trust

Dr Natalie Pattison, Senior clinical research fellow, The Royal Marsden NHS Foundation

Dr Claire Shaw, Consultant dietitian, The Royal Marsden NHS Foundation

Dr Isabel White, Clinical research fellow in psychosexual practice, The Royal Marsden NHS Foundation

Dr Jane Winter, Consultant colorectal cancer nurse,  University Hospital Southampton NHS Foundation Trust

Professor Julia Addington-Hall, Health Sciences, University of Southampton.  End of life research

Professor Maureen Coombes,  Victoria University of Wellington, New Zealand. Clinical Nursing (Critical Care)

Associate Professor Doris Howell,  Lawrence S. Bloomberg Faculty of Nursing, University of Toronto in Canada.  Clinical intervention research

Professor Laura Siminoff, Dean of the College of Public Health at Temple University, Philadelphia, PA, USA. Cancer-focused research and organ and tissue donation research

Professor Claire Wakefield, Associate Professor in the Faculty of MedicineUniversity of New South Wales in Australia.  Young people cancer focused research

Dr Carol Rivas, Visiting Senior Research Fellow

Dr Shirley Siu Yin Ching, Assistant Professor in nursing at the School of Nursing, Hong Kong Polytechnic University 

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