Macmillan Survivorship Research Group
The Macmillan funded MSRG research programme is designed to inform the development of more efficient and effective services to support survivors and enhance their return to fulfilling lives.
Overview
Resources
Staff
PhD Students
Clinical Academics
Visiting Fellows
Our research is making a positive difference to people affected by cancer (including those at increased risk), life-limiting conditions, and those at the end of life, their families, communities and the health care professionals who support them by:
- Advancing understanding of the nature and complexity of recovery in those who have cancer through large prospective cohort studies
- Developing and testing new forms of self-management support for people affected by cancer and life-limiting conditions
- Developing and testing new approaches to engaging with and supporting people involved in complex decision making
- Advancing understanding of patient outcomes and experiences by exploiting large datasets
- Characterising factors that impact on quality of care and choices for those in the last year of life
- Advancing understanding of the best ways to increase rates of organ and tissue donation and supporting family decision making
Partnerships
CLAHRC Wessex Theme 6: Complexity at End of Life
Complexity, Patient Experience, and Organizational Behaviour research programme in NIHR CLAHRC Wessex
TrueNTH
TrueNTH partnership programmes
The Royal Marsden NHS Foundation Trust
Applied Health Research, The Royal Marsden NHS Foundation Trust collaboration with Health Sciences, University of Southampton
REF 2014 Impact Case Study
Transforming care for cancer survivors
REF 2014 Impact Case Study
Organ and Tissue Donation: supporting the decision-makers
Process of measuring quality of life
University Hospital Southampton is acting as one of 5 pilot sites t...
Read MoreBowel cancer patients without vital social...
Bowel cancer patients who lack a key type of social support are mor...
Read More| Staff Member | Primary Position |
| Lucy Brindle | Associate Professor in Early Diagnosis Research |
| Lynn Calman | Senior Research Fellow |
| Natasha Campling | Senior Research Fellow |
| Anne-Sophie Darlington | Associate Professor |
| Amy Din | Senior Research Assistant |
| Faye Doyle | Programme Manager |
| Sue Duke | Associate Professor |
| Claire Foster | Professor of Psychosocial Oncology and Cancer Survivorship and End of Life Care research lead |
| Rebecca Foster | Research Fellow |
| Jane Frankland | Senior Research Fellow |
| Chloe Grimmett | Senior Research Fellow |
| Tracy Long-Sutehall | Associate Professor |
| Elaine Lennan | Consultant Nurse |
| Dr Duncan Randall | Principal Teaching Fellow |
| Alison Richardson | Clinical Professor in Cancer Nursing and End of Life Care, ARC |
| Sam Sodergren | Research Fellow Patient Reported Outcome Assessment, Study Co-ordinator for the development of EORTC Quality of Life Modules |
| Sophia Taylor | Senior Research Assistant |
| Kay Townsend | Lecturer in Cancer Care |
| Josh Turner | Research Fellow |
| Richard Wagland | Senior Research Fellow |
| Sally Wheelwright | Senior Research Fellow |
| Theresa Wiseman | Clinical Professor of Applied Health Research in Cancer Care |
| Jane Winter | Research Fellow |
| Student Name | Topic |
| Abbot, Amelia | Risk management by carers of people with dementia |
| Ab Latiff, Dilla Syadia | Organ donation behaviour: understanding the factors stimulating the decision to register as a potential organ donor in Malaysia |
|
Agyemang, Linda Serwaa |
How can health professionals support decision making in women with breast cancer in West Africa?/td> |
| Al Habsi, Raya Said | School-based intervention to enhance self-management among adolescents with type 1 Diabetes Mellitus |
| Althagafy, Mohammed Mostafa | Public information for preventing and early detection of oral cancer in Saudi Arabia |
| Alqahtani, Qamra Muaikel | Childhood cancer survivors and their parents experience of managing cancer related fatigue |
| Alshawabkeh, Hisham | Collaboration between GPs and specialist cancer teams to improve dialogue along the patient pathway |
| Andrews, Nicola | Multidisciplinary team involvement in advance care planning for older people in care homes |
| Angior, Chukwuma | Care of the elderly in Nigeria |
| Attallah, Dena | Nurse sensitive outcomes in ambulatory chemotherapy |
| Aze, Daniel | Exercise in patients with advanced cancer |
| Bailey, Sarah | A feasibility and acceptability study and qualitative process evaluation of a coping intervention for recurrent miscarriage |
| Bennett, Helen | Parent's perceptions and experiences of advance care planning for children with life-threatening and life-limiting illness |
| Catwell, Lorraine | Perceptions and management of lung cancer |
| Chapman, Suzanne | Research around the needs of people with persistant pain as a consequence of cancer or its treatment in those living beyond cancer (cancer survivorship) |
| Clark, Louise Julia | Exploring the features of depression in people with aphasia following stroke: Implications for clinical practice |
| Dawson, Camilla Clare | Development of a model of speech and language therapy in people with head and neck cancer |
| Din, Amy | Understanding healthful behaviours in colorectal cancer survivors and designing an intervention to support positive lifestyle change after diagnosis |
| Downes, Samuel | Understanding patient experiences of rare cancer: pseudomyxoma peritonei |
| Gray, Carol | A longitudinal exploration into the needs and preferences of older people approaching end of life in the community, and if these change over time |
| Hasliza, Wan | Narratives of breast cancer decisions in Malaysia |
| Hibbert, Denise | Quality of life in a Saudi population undergoing Curative Surgery and Radiotheraphy for Rectal Cancer in a Tertiary Referral Centre |
| Holley, Denise | An exploration of coping in parents whose child with cancer is at the end of life |
| Howard-Jones, Gilly | An exploration of coping in parents whose child with cancer is at the end of life |
| Hutt Greenyer, Corinne | An exploratory study into the impact of bereavement on how people organise and go about their daily routines |
| Liao, Weiqi | Exploring the relationship between socioeconomic status, risk factors and typical pathways to late cancer diagnosis |
| Lin, Yanxia | Family narratives of the decision to transfer dying patients home from CCU |
| Lippiett, Kate | Treatment burden in patients with chronic obstructive pulmonary disease and lung cancer |
| Madechangu, Isabel | Validation of lung cancer risk indicators and development of a triage system for Chest Clinic referrals suspicious for lung cancer |
| Masters, Jayne | Understanding variations in the management of patients with heart failure |
| Yvonne Middlewick | A study of the lived experiences of women during the menopausal transition from a male and female perspective |
| Mitchell, Paula Ann | Collaboration between GPs and specialist cancer teams to improve dialogue along the patient pathway |
| Muoni, Tamburai | Ethics and litigation in midwifery |
| Myhill, Kathryn | How men manage the experience of trans-rectal biopsy |
| O’Connor, Lindsay | Treatment burden in people with a brain tumour from the perspective of bereaved carers |
| Nash, Kate | An investigation into midwifery practice and decision making during the second stage of labour |
| Pritchard, Jane | An exploration of the perceptions of younger people with dementia about hope |
| Reed, Sarah | What are the experiences of asthma support in infant school settings from children, parental, school staff and health care professionals perspectives in order to inform an implementation strategy for recent changes in statutory guidance? |
| Sandsund, Catherine Alexandra | Rehabilitation therapy interventions in people with advanced lung cancer |
| Shrewbridge, Amanda | Decision making about treatment in women with breast cancer of West African origin |
| Stapleton, Sarah | The impact of novel antitumour molecularly targeted therapeutics on cognitive function in patients with advanced cancers participating in Phase I clinical trials |
| Styles, Lois Alice | Narratives of advanced alcohol related liver disease |
| Tavares, Nuno Caixinha | End of life in chronic obstructive pulmonary disease |
| Van der Geest, Ivana | Long-term experiences of parents and physicians with palliative care in pediatric cancer patients |
| Westwood, Richard Frederick | Spirituality and mental health nursing |
| Wheelwright, Sally | A psycho educational intervention for patients with cancer cachexia and their informal care givers |
Dr Naomi Farrington, Clinical academic fellow, University Hospital Southampton NHS Foundation Trust
Dr Elaine Lennan, Consultant chemotherapy nurse, University Hospital Southampton NHS Foundation Trust
Dr Luise Marino, Visiting Post doctoral paediatric dietician, University Hospital Southampton NHS Foundation Trust
Dr Emma Murphy, Post-doctoral researcher, University Hospital Southampton NHS Foundation Trust
Dr Natalie Pattison, Senior clinical research fellow, The Royal Marsden NHS Foundation
Dr Claire Shaw, Consultant dietitian, The Royal Marsden NHS Foundation
Dr Isabel White, Clinical research fellow in psychosexual practice, The Royal Marsden NHS Foundation
Dr Jane Winter, Consultant colorectal cancer nurse, University Hospital Southampton NHS Foundation Trust
Professor Julia Addington-Hall, Health Sciences, University of Southampton. End of life research
Professor Maureen Coombes, Victoria University of Wellington, New Zealand. Clinical Nursing (Critical Care)
Associate Professor Doris Howell, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto in Canada. Clinical intervention research
Professor Laura Siminoff, Dean of the College of Public Health at Temple University, Philadelphia, PA, USA. Cancer-focused research and organ and tissue donation research
Professor Claire Wakefield, Associate Professor in the Faculty of Medicine, University of New South Wales in Australia. Young people cancer focused research
Dr Carol Rivas, Visiting Senior Research Fellow
Dr Shirley Siu Yin Ching, Assistant Professor in nursing at the School of Nursing, Hong Kong Polytechnic University