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The University of Southampton
Macmillan Survivorship Research Group

RESTORE - Online resource

Web-based intervention to support people with cancer related fatigue

Funder: Macmillan Cancer Support
Chief Investigator: Professor Claire Foster
Research Team: Dr Chloe Grimmett, Mrs Chris May, Dr Lynn Calman

Cancer-related fatigue (CRF) is a common problem often reported during chemotherapy and radiotherapy treatment. Many people also report CRF persists, sometimes for years, once treatment is over. CRF can be very debilitating and may affect people’s lives in a number of ways. It can impact on how someone feels about themselves, whether and how they engage in everyday activities, and may affect their relationships with others.

We have developed  a web-based resource (RESTORE) which aims to increase people’s confidence to manage the problems they face as a result of CRF. In a study of 163 participants we have compared the RESTORE resource with a leaflet; Macmillan Cancer Back up 'Coping with Fatigue'.  In this study half of the participants were given the booklet and the other half used the RESTORE resource. This will allow us to see which is more helpful. The people who are in the booklet group will be able to use the RESTORE resource once they have completed the study.

Recruitment to the RESTORE study has been very successful with a lot of interest among people affected by cancer. Results of the trial will be available in Summer 2015.

If RESTORE is successful we plan to develop similar resources to help people manage other issues that are important to cancer survivors.

We have published a paper describing the development of RESTORE below.

For more information about RESTORE, please contact the MSRG Team on 02380 596885 or e-mail: msrg@soton.ac.uk

 

 

 

 

 

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