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The University of Southampton
Macmillan Survivorship Research Group

Our research

Around 2 million people are living with or beyond cancer in the UK and this figure is rising by more than 3% per year (Macmillan, 2008). Whilst increasing survival rates are to be celebrated, the experiences and needs of those who have completed their primary cancer treatment are relatively neglected (DoH, 2007).

Health professionals may be unaware of who is struggling with problems (Maher & Makin, 2007). Self management support can increase quality of life (QoL) and confidence in managing problems associated with cancer (Lev et al, 2001). Our research programme will identify who is most likely to need self management support following primary treatment and what forms this should take.




Ongoing Projects:

Macmillan HORIZONS Programme

A cohort study to explore recovery of health and well-being in adults diagnosed with cancer

Macmillan CREW Cohort

A cohort study to explore recovery of health and wellbeing following primary treatment of colorectal cancer (ColoREctal Wellbeing cohort study)

TrueNTH Global Registry- Prostate Cancer Outcomes

A cohort study to explore physical and mental health following treatment of prostate cancer

NIHR Post Doctoral Fellowship

Development of a conceptual model and intervention to promote sustained, long-term physical activity after cancer

Macmillan ENABLE Study

A longitudinal qualitative study to understand the importance of self-management support in people living with cancer

Marie Curie and Motor Neurone Disease Association DiAMoND Study

Development and pilot testing of a web-based decision aid for people with motor neurone disease considering a gastrostomy feeding tube





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