Patient and public involvement (PPI) is research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.
PPI participants include patients, carers and healthy volunteers. They represent the patient voice and give feedback on decisions such as:
- how a trial should be run
- whether the trial is asking too much of participants
- whether patient information leaflets and consent forms are understandable
The Southampton Clinical Trials Unit is part of the Wessex Public Involvement Network (Wessex PIN). It brings together clinical staff and the public to improve how the public is involved in research.