Project Overview:
The research will involve collection and analysis of qualitative data in Pakistan from four different groups:
- People with a diagnosis of mild dementia;
- People who provide unpaid care for someone with mild dementia;
- People who have no experience with dementia;
- Key stakeholders
Academics:
Department of Gerontology and Centre for Research on Ageing , University of Southampton
Principal Investigator: Prof Asghar Zaidi
Co-Investigator: Dr Rosalind Willis
Centre for Dementia Studies, Brighton and Sussex Medical School
Co-Investigator: Dr Nicolas Farina
Researcher: Dr Sara Balouch
Aga Khan University, Pakistan
Co-Investigator: Dr Qurat Khan
Alzheimer’s Pakistan, Pakistan
Co-Investigator: Dr Hussain Jafri
HANDS International,
Researcher: Dr Irfan Ahmed
Senior General Manager: Rubina Jaffri
Scientific Advisory Board:
Lord Dr. Shaukat Khan, Chair
Prof Dr. Yasmin Raashid, Patron in chief, Alzheimer’s Pakistan, also professor at Central Park Medical College Lahore
Prof Dr. Murad Moosa Khan, Head of the Department of Psychiatry, Aga Khan University
Prof Dr Arsalan Ahmad, Professor of Neurology, Shifa International Hospital, Islamabad
Simon Hunt/ Dr Rauf Khan, Oxford Policy Management, Oxford/ Islamabad
Dr. Maryam Rab, Research Evaluation Monitoring Unit, British Council, Islamabad.
Project activities/ updates:
You can access a poster on the project here.
A blog on the project can be read here.
You can download the Final Report here
The project findings were reported in newspapers in Pakistan in English and Urdu (including Daily Times and DAWN), and also reported on television (including Dunya News and Jaago Lahore). The Story from Dunya News contains an informative video on dementia in Urdu created in response to the research project.
Article:
Willis, R., Zaidi, A., Balouch, S., & Farina, N. (2018). Experiences of people with dementia in Pakistan: help-seeking, understanding, stigma, and religion. The Gerontologist, 1-10. DOI: 10.1093/geront/gny143
Conference presentations:
Farina, N., Balouch, S., Willis, R., & Zaidi, A. (2018). Attitudes and knowledge of dementia in Pakistan: perceptions of the general public. Poster session presented at Alzheimer's Disease International Conference, Chicago 2018, Chicago, United States.
Balouch, S., Farina, N., Zaidi, A., & Willis, R. (2018). Experiences of dementia caregivers in Pakistan. Poster session presented at BSG 2018: The British Society of Gerontology 47th Annual Conference.
Willis, R., Zaidi, A., Farina, N., & Balouch, S. (2018). Experiences of people living with dementia in Pakistan. Paper presented at British Society of Gerontology 2018, Manchester, United Kingdom.
Farina, N., Willis, R., Balouch, S., Khan, Q., Jafri, H., Ahmed, I., & Zaidi, A. (2017). Understandings of dementia in Pakistan: a project proposal. Poster session presented at Alzheimer's Association International Conference, London, United Kingdom.